I've managed to lose friends and get excluded from family events. My husband and I live in NY while his family is in southwestern VA. Early spiring they got all the kids together (11 total between 3 families) and took them to Disney. We weren't even told because they assumed I wasn't capable of making the trip there for my son was excluded from the family get together. I still cry about
it thinking how much my health is effecting his life already. They got everyone together again in June, gave us 2 days notice and again said "we didn' think Kim would be able to make the trip or we'd have called you sooner" at that point the only reason we didn't make it was because neither of us could get time off. Hubbie is doing his best to let them know I can travel and am in good enough shape to tolerate what a trip like that can include so hopefully they will change.
On top of that I have almost no friends left, they all think I'm blustering and making things up to seem more important than them. Is it my fault I have had 6 surgeries already and 2 major diseases???? Did I choose this?? No I was dealth this hand and I am doing my best with it, I don't go around bragging about
what I have I just happen to have been through alot so when they ask about
things I usually have answers and they think I'm trying to be a know-it-all. I don't volunteer things I only tell them when asked . . . .why do they get so upset and stop talking to me when they were the ones that asked for my input in the first place???? I really don't understand people some times.
~ Mom of Nathaniel aka "Peanut" 18m (6/08)
~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle 1x day Prenatal Vitamin (good folic acid level and the only iron supplement I can manage to take)
Colozal from 6/2001-7/2007 Asacol 8/2000 -5/2001 no effect - (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) dx 9/2007 with FSGS - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV bi-weekly for now (re-evaluated every 16 weeks)
- Allergies - Zyrtec 10mg - skin hives when exposed to water (not kidding)(haven't been tested officially but pine alergy is also suspected)