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Disbooner
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 7/7/2008 7:50 PM (GMT -7)   
So, I'm tapering off Prednisone right now.  Started at 40 mg, now at 20mg.  The symptoms have never actually come under control.  I was getting better after the first week, but my GI put me on Asacol which actually caused me to regress for a week.  I called him today and he said that it is not uncommon for Asacol to cause D and blood.  I was told to just stop taking it and to stick with the Prednisone.  I guess I'll see if that works, but don't have high hopes since I've now tapered down to 20mg and don't have the flare under control. 
 
I'm new to the disease, so maybe I'm just being impatient.  Anyone else with similar experience?

bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 7:15 AM (GMT -7)   
Keep trying things until something works. Are you on anything besides the pred? Maybe suppositories or enemas may be a good thing to try, ask your doctor. Probiotics? Fiber supplements (Citrucel?) Just a few ideas to think about. Sometimes I think some doctors don't have a clue, it is scary. I wish you remission as soon as possible, Belski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 7/8/2008 8:38 AM (GMT -7)   

Disbooner,

I couldn't take Asacol either for the same reasons, it worsened my symptoms.  The only 5ASA drugs I have been able to take and see results from are Lialda and Canasa suppositories.  The doctor prescribed 3 Lialda a day.  Three gave me gas and with the gas came mucous.  So, I cut back to 2 a day and that worked MUCH better.

As far as the Pred, I am weaning off for reasons other than remission.  My doctor explained to me that the Pred was to get things under control and then, hopefully, a 5ASA drug would start working.

I totally agree with Belski, I think your doc should be able to add something else.  I also totally agree with Belski on doctors being clueless sometimes.

Good Luck!

Beth


40 mgs of Pred
50 mgs of Imuran
3 Lialda
1 Canasa at night
 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 7/8/2008 8:52 AM (GMT -7)   
Asacol didn't do a thing for me, however Azulfadine works wonders. Have you asked about that? If you do ask and you are told that if one 5ASA doesn't work then the others won't either, don't believe it, it's absolutely not true. Azulfadine (generic is sulfasalazine) has alot less side effects than most other drugs (I'm not saying it doesn't have any side effects) It's definitely worth trying before going onto high strength drugs. How about adding some rectal meds also? Good Luck

p.s.  I actually believe that Asacol made my symptons worse too.  I had the longest and worse flare (2 years while I was on the asacol) than I have ever experienced in my whole 26 - 27 years of having UC.


*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 

Post Edited (munchkindd) : 7/8/2008 9:55:58 AM (GMT-6)


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/8/2008 10:43 AM (GMT -7)   
I'll put in a good word for sulfasalazine, too.  It wasn't until I was switched to this med that I realized Asacol wasn't working.  Side effects have been tolerable and have mostly gone away.
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