OT - Major Stress

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/8/2008 10:09 AM (GMT -6)   
Just got a call from my Mom's case worker, the funding for the people that go to her apt a few times a week to make sure she takes her meds has been cut, they found out yesterday and the last day is this Friday.
 
I am freaking out, she is schizo-affective/bi-polar and without people monitoring her she will eventually stop taking her meds and when that happens, it is devastating.  These people have no idea that they are loosing all of these people not just my Mom out on society, she would never hurt a fly or say a bad word but w/out her meds if she hears the voices tell her to jump in front of a school bus to save the children, she will even if it ends up inadvertently causing an accident (that is my biggest fear, because something similar has already happened with her and she was hospitalized and it took years to get her to be as well and happy as she is now and plus people are safe).
 
I know there is a solution, but darn, if stress can cause a flare for me, then this will be the mother-load!
 
I can go up to make sure she takes her meds but that is not a long term solution.  Maybe I can find someone who lives near her looking for extra income to just go watch her take her meds everyday?
 
Last night I was really happy, thinking oh my flare is almost in pred induced remission and hoping that I can taper successfully and how I think the bubbles in my urine are much less and maybe just maybe the tekturna is working and my kidneys will go into remission and BAM this news.  EVERY single time I get really happy and think wow things will be allright, something really bad happens, EVERY time.  I keep on telling myself it is a coincidence...............and even as I think things will be allright I get that sinking feeling that something bad is going to happen. ***!
 
Thanks for listening, all will be ok, I know but I needed to vent after getting the rug pulled out from under me.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 7/8/2008 10:17 AM (GMT -6)   
You have a lot to deal with, any wonder you are flaring.Stress triggers nearly every flare i have ever had.It is a major player in my health.I can't hbelieve that the funding has been withdrawn.This must be a really worrying time for you. Can this case be appealed?I hope things work out for you i really do!!

your in my thoughts
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


       
            http://www.myspace.com/martybuzz1<FONT]


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/8/2008 10:25 AM (GMT -6)   
thanks Marty for your response and kind words.  no flare yet, I had a stellar poop this am, I was so proud of it.

I will definitely do whatever I can and will be contacting people in the gov't of NH to see what can be done.

These people who cut funding do not know what they have done, luckily my Mom has family to help her but most do not and w/out their meds there are going to be many more mentally ill people who were doing well but w/out their meds will end up on the streets b/c they stop taking them and they get all messed up.


Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 7/8/2008 10:26 AM (GMT -6)   

Beth,

I am so sorry to hear that!  My mom cared for both of her elderly parents, and I don't think I have ever seen her under that much stress.  It's truly cause for being depressed and stressed.  Not only do you now become the "parent," you also have to deal with junk like funding, finding people you trust to look in on your mom, etc.  The list truly goes on and on.

I am sorry that I don't have any advice.  Please know that I will keep you in my thoughts and prayers, and I hope that you are able to find a solution.

Beth


40 mgs of Pred
50 mgs of Imuran
3 Lialda
1 Canasa at night
 
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/8/2008 12:56 PM (GMT -6)   
I'm not sure where you or your mother live, but there may be other organizations that can provide the same service. And, if your mother is over 55, you might be able to find a nonprofit organization that provides older adult outreach services. These can often be found by calling your county's mental health extension and, sometimes, even your local library can help put you in the right direction.

The economy and price of gas have really hurt a lot of these programs.

Good luck.

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/8/2008 3:57 PM (GMT -6)   
thanks, she has Medicaid, Medicare, AARP RX and goes through the mental health facility of her city, unfortunatly this is the program that was cut.

Luckily I found an organization that is going to help me navigate through all this. I also contacted Easter Seals where she used to go for adult day care and they have a med monitoring program but it costs $36 a day, unless I can get her approved for Title 20 or HCBC thru Medicaid.

I don't know how I would be able to deal w/this flaring.

thanks for all your kind responses and support!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/8/2008 5:43 PM (GMT -6)   
Beth, I'm sorry this has happened. But hopefully the organization you found will help you lots in getting through this and obtaining the proper help!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 

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