Just got a call from my Mom's case worker, the funding for the people that go to her apt a few times a week to make sure she takes her meds has been cut, they found out yesterday and the last day is this Friday.
I am freaking out, she is schizo-affective/bi-polar and without people monitoring her she will eventually stop taking her meds and when that happens, it is devastating. These people have no idea that they are loosing all of these people not just my Mom out on society, she would never hurt a fly or say a bad word but w/out her meds if she hears the voices tell her to jump in front of a school bus to save the children, she will even if it ends up inadvertently causing an accident (that is my biggest fear, because something similar has already happened with her and she was hospitalized and it took years to get her to be as well and happy as she is now and plus people are safe).
I know there is a solution, but darn, if stress can cause a flare for me, then this will be the mother-load!
I can go up to make sure she takes her meds but that is not a long term solution. Maybe I can find someone who lives near her looking for extra income to just go watch her take her meds everyday?
Last night I was really happy, thinking oh my flare is almost in pred induced remission and hoping that I can taper successfully and how I think the bubbles in my urine are much less and maybe just maybe the tekturna is working and my kidneys will go into remission and BAM this news. EVERY single time I get really happy and think wow things will be allright, something really bad happens, EVERY time. I keep on telling myself it is a coincidence...............and even as I think things will be allright I get that sinking feeling that something bad is going to happen. ***!
Thanks for listening, all will be ok, I know but I needed to vent after getting the rug pulled out from under me.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!