What do you take for the pain?

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MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 11:33 AM (GMT -6)   
What do most people take for stomach cramping and pain during a flare?  Do people take painkillers for these or are those considered a no-no during a flare? I had one doc tell me painkillers can make a flare worse, then another tell me they were ok.
 
Is it normal to have pain one day, then for a few days its gone, then all of a sudden its back? I can deal with the bleeding - life goes on in that respect. But the stomach pains - you can't do anything much less even barely move without doubling over in pain. Makes being at work a bit of a challenge when I don't even want to leave my cube. Also makes staying hydrated difficult when even drinking liquids causes horrible stomach pains to start. 
 
So far I've tried - TUMS, Levsin, Bentyl, Gax-X
 
Thanks!
 
-------------------------
Colazal - 3pills 3xday, Mesalamine enema twice daily, 40mg Pred

TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 7/8/2008 12:19 PM (GMT -6)   
I take Mylanta original. It seems to taste the best. Sometimes, it works. Other times, not so much. I think I have 3 different kinds of stomach pain, though. I also take tylenol for pain, but haven't tried it for my stomach aches, yet. Does your doc know about your stomach pain?
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 12:32 PM (GMT -6)   

I told the doc about the pain. They didn't give me much as far as help in the area.  All they said is if I'm not getting better, I can come in for IV steroid treatment if I need to. Not sure that is going to help the stomach pain, as I'm not even sure if it is related to the UC or not since the bleeding seems to get better with the enemas.

I have an appt with my doc next thurs, I'm going to ask him about any tests that can be done to rule out any additional problems with my stomach, such as an ulcer. I've never had this type of stomach pain with a UC flare before, so I'm wondering if it is something additional to the flare.


bap06
Regular Member


Date Joined Jun 2008
Total Posts : 57
   Posted 7/8/2008 2:43 PM (GMT -6)   
The only time I really needed meds for the pain was during my last flare when I was hospitalized - they had me on IV Dilaudid, then switched to pill form when I went home. Only used it when the pain was truly severe, because it is a narcotic, and definitively can be addictive.
*Diagnosed 10/07 (6 months pregnant w/ 2nd baby)
*Currently in remission
*Lialda (3 x a day)
*Canasa
*Prilosec
*Calcium, multivitamin, Metamucil, iron


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 7/8/2008 2:48 PM (GMT -6)   
tylenol has helped me, but you don't want to take too much of that either. Tylenol is safe for UC
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 2:50 PM (GMT -6)   
Does Tylenol really help with stomach cramps? I never thought to try that for anything other than a headache. I'll have to try and see if it does anything.  I'm wondering if I could get something to coat my stomach before taking the Pred, if that would help as well.

TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 7/8/2008 2:53 PM (GMT -6)   
Yeah, docs really don't seem to care when you tell them you're in pain. It's like they're too used to hearing it.

I've been having pretty severe stomach pain since this May (I was dx'd w/UC in 8/07, but undiagnosed for 2 yrs prior). I switched docs and meds in the middle of June. This doc said she won't do anything about the pain until my colonoscopy tomorrow. As far as I can tell, it can be a number of things. From my ER visit, the doc suggested that it could be from flaring and a normal part of UC. From the location, he thought the appendix. The ER doc suggested a CT scan and bloodwork, but I didn't do it.
Then, my previous GI thought it was gas and suggested maalox (mylanta goes down easier for me). Then, I've wondered if it's a side effect from the meds, but am not sure, since I switched meds. I went from Lialda to Asacol and my relentless bleeding (3 years) pretty much stopped. But, the pain is still very bad and pretty constant. It wakes me up for hours a night. Even though I'm barely bleeding and am having normal bm's I'm determined to find the cause of this pain. It's only second to childbirth for me.

Anyway, I don't know what's wrong with you or why you're having pain, but this has been my process. I think others would say that you don't have to be bleeding to be flaring. There may be inflammation causing the pain. If I find anything out tomorrow, I'll let you know.

I hope that you feel better.
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 3:00 PM (GMT -6)   
Tressa, it sounds to me like you should definitely have your doc run some other tests to rule out any other reason for the stomach pain. When I do flare and have blood, I normally never have the stomach pain, and I know next week I will be demanding that my doctor run some more tests to look beyond the UC.  I hope your colonoscopy goes well tomorrow, I know you don't have a fun evening ahead of you with the prep! 
Let us know how it goes.
 
Nikki

potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 7/8/2008 4:22 PM (GMT -6)   
tylenol helps me alot plus I use a heating pad which seems to help also.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 4:23 PM (GMT -6)   

What do you know - I've got a heating pad on my stomach right now :)

I think I may try taking a different antacid (liquid) right before I take the prednisone tomorrow. Hopefully that will help a bit too.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/8/2008 4:24 PM (GMT -6)   
If I'm having burning pain I chug some pepto and that seems to help but otherwise I've always been too timid/embarrassed to ask for pain meds and Tylenol does nothing for me. I get migraines though and take Ibuprofen when I have to (I know it's bad but nothing else helps and they'll literally last for days if I don't) and Imitrex 100mg if I have any.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 7/8/2008 4:48 PM (GMT -6)   
Thanks. Hopefully I'll get some info tomorrow that'll help. As for tonight, the games have begun!

Good luck with your doc visit next week!
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


Just here...
Regular Member


Date Joined Feb 2006
Total Posts : 110
   Posted 7/8/2008 5:07 PM (GMT -6)   
WHen the pain gets REALLY bad, I'll actually take Midol, yes guys and gals, I said Midol. It helps with the cramps, bloating, etc! I also drink plenty of warm to hot water, plain, rub my tummy, firmly, but not pushing too far into it, clockwise. I read that is something that as a baby, mothers did that to sooth babies tummies, and that somewhere in your mind, it will bring back the memory of that and help. It sounds weird but it really works. I take so much tylenol, that I buy it in bulk!
Jared
Pancolitis diagnosed in '99
Crohn's Disease diagnosed in '06
Currently on:
Medrol Dose Pack
Imuran 100 MG Daily
Asacol 1600 MG Daily
Flexeril 10 MG (four times a day for relaxation/stress relief)
Remicade
Slow release Iron
 
 

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