Yeah, docs really don't seem to care when you tell them you're in pain. It's like they're too used to hearing it.
I've been having pretty severe stomach pain since this May (I was dx'd w/UC in 8/07, but undiagnosed for 2 yrs prior). I switched docs and meds in the middle of June. This doc said she won't do anything about the pain until my colonoscopy tomorrow. As far as I can tell, it can be a number of things. From my ER visit, the doc suggested that it could be from flaring and a normal part of UC. From the location, he thought the appendix. The ER doc suggested a CT scan and bloodwork, but I didn't do it.
Then, my previous GI thought it was gas and suggested maalox (mylanta goes down easier for me). Then, I've wondered if it's a side effect from the meds, but am not sure, since I switched meds. I went from Lialda to Asacol and my relentless bleeding (3 years) pretty much stopped. But, the pain is still very bad and pretty constant. It wakes me up for hours a night. Even though I'm barely bleeding and am having normal bm's I'm determined to find the cause of this pain. It's only second to childbirth for me.
Anyway, I don't know what's wrong with you or why you're having pain, but this has been my process. I think others would say that you don't have to be bleeding to be flaring. There may be inflammation causing the pain. If I find anything out tomorrow, I'll let you know.
I hope that you feel better.
Tressa 35 (F)
Colazal 3X3/day, Lialda upped to 4/day, Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed