Off topic, need ideas, advice or prayer...

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bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 12:20 PM (GMT -6)   
Hi, my daughter has a good friend who is 18 years old, just graduated from high school and was going to go to the community college this fall.  In early June, she got real sick, went unconscious, had seizures, they put her in the hospital, transfered her to Rush (Chicago).  She been on a ventilator.  Now has  bed sore.  Her name is Brandy, if you are a prayer, please lift her and her family up.  They couldn't find what was causing this.  Now they think it may be a rare form of West Nile Virus that usually kills 50 to 75% of people who get it, can cause mental retardation, paralization, etc.  The insurance co. they have maxes at one million and they are almost there, so they won't be insured.  The mom has one week left to get back to work or she will lose her job.  My heart breaks for them, realy, I want to just cry.  Any ideas.....Applebees, where she and my daughter work, had a car wash fundraiser and raised 1300.   They have another little fund raiser going.  Do you have any simple but great fund raiser ideas, ideas of how my family can help or ideas of help for no insurance after they reach their max.......I thought of Hospice, but I don't think that applies here.  Let me know any thoughts, let's pray for a miracle.  Thanks guys, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/8/2008 12:36 PM (GMT -6)   
Have you thought about Medical Assistance from the county? I don't know what their financial situation is, and it can be difficult to obtain - but I was able to get this when I was in college since I had such low income. It was a huge pain constantly proving that I didn't make enough to pay for my bills and had no other insurance. I'm not sure of the rules if they already have an insurance plan (even if it isn't paying), but it might be something to look into.

My thoughts are with your friend and her family!

bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 12:56 PM (GMT -6)   
Thanks, I'll mention the Medical Assistance from the county to my daughter in case that helps them. I appreciate it. This is my daughter's friend, I have never met her personally but I am so sad, crying and really feeling overwhelmed about it. Thanks again, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


Concerned Wife in WA
Regular Member


Date Joined Jun 2008
Total Posts : 37
   Posted 7/8/2008 1:03 PM (GMT -6)   
I will pray for her. Have you heard bout silent unity. They are a 24 hour prayer service. You call or email them and tell them the persons name and what is going on and they put them on the prayer board and pray for them for 30 days with a lot of people. They also say a prayer with you and always make you feel a little better. I would suggest you calling and having her call it always helps when the person calls. look them up online. silent unity. Our thoughts are with her.
44 y/o Alaska Crab Fisherman

Diagnosed May 2008
Mesalamine 12 pills daily
Prednisone 40 mg
Oemneprazole 40 mg
Zofran
Reglan

Remicade

Taking multiple vitamin supplements, lots of omega 3's and Antioxidants


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 1:28 PM (GMT -6)   
I will look them up for sure, thank you. I do not think Brandi is able to talk on the phone, but I will tell my daughter, greatly apreciate it, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/8/2008 1:51 PM (GMT -6)   
Since she just graduated from high school, she must be 17 or 18. They should check with the appropriate department in your state on Medicaid coverage for her, since she is (or is nearly) an adult. If she survives with a lasting impairment, she may also qualify for rehab assistance through your state's Developmental Disabilities program.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Chris'sColon
Regular Member


Date Joined Jun 2008
Total Posts : 237
   Posted 7/8/2008 2:35 PM (GMT -6)   
fundraising: my friend's neice has spina biffida (sp?) anyways, several times we got together and did the street-corner (no, not that kind of fundraising)/intersection, signs and buckets collecting change thing that you often see youthgroups and high school sports teams doing. one of the days we collected several thousand $$$. you'll/she'll have to check with your city's laws on parading and gathering, and they'll need at least a dozen people.
Veronica (26), mommy to Chris (2.5 yr old, diagnosed november 2007 with left sided UC) and Emily 2.5 months
 
Chris current meds:
 Pentasa 250mg 3x's daily
 Culturelle 1x daily
 Prevacid 30mg 1x daily
 Prednisone 15mg 1x daily


Just here...
Regular Member


Date Joined Feb 2006
Total Posts : 110
   Posted 7/8/2008 5:16 PM (GMT -6)   
I was the KING of fundrasiers in High School...
Dinners are always good, you can house it in the school cafe or gym, and send letters out to local businesses asking for donations, etc, not just for food, but for items, and also do a 50/50 raffle there, drawings, etc.. Silent auctions are always good too, or even auction-auction, like a 'slave' auction, where the highschool kids get bid on, and the person who wins them helps with chores, lawn care, etc... We also did a soda can drive, (If you state or country) has a deposit on cans and bottles, which can generate quite a bit of cash.

I'll also put her in my prayers...
Jared
Pancolitis diagnosed in '99
Crohn's Disease diagnosed in '06
Currently on:
Medrol Dose Pack
Imuran 100 MG Daily
Asacol 1600 MG Daily
Flexeril 10 MG (four times a day for relaxation/stress relief)
Remicade
Slow release Iron
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 6:08 PM (GMT -6)   
Those are great ideas! I was just talking to my daughter about the idea of a candlelight bowl, there we would also have a raffle, 50/50, etc. I'll run these other idea by her too. You just feel helpless with situations like this. Thanks too for the prayers! Life can be so hard sometimes.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 7/8/2008 6:23 PM (GMT -6)   
Someone just recently told me that Applebee's will host a pancake breakfast, for a fundraiser. The woman was from Mount Pleasant, SC, a suburb of Charleston. Maybe their manager could contact the SC Applebees about how to do one. Just a thought.
UC Mom
Son diagnosed 10, 2006 at age 15
6MP 75 mg. per day
Vitamin Supplements


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 6:30 PM (GMT -6)   
Another excellent idea! Thank you!
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 

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