Flares - How long?

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UCRichmond
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/8/2008 2:30 PM (GMT -7)   
First I would like to thank everyone on this forum for their support of each other and information that is shared. I was diagnosed UC in March of this year. After my colonoscopy, I went on 10mg of Prednisone and 9 pills of Asacol daily. I changed my diet, learned how to better manage stress, and now exercise 4-5 times a week. I weened off the steriod in a week and went down to 6 pills of Asacol daily. The info you have all shared helped me go into a temporary remission fairly quickly. I lost 20 lbs of excess weight and had never felt better before until 2 1/2 weeks ago. I am in the middle of flare and not sure how long this flare will last. As you all know, the cramping is painful. I have continued to change my diet - but with most of my diet under control and knowing what foods to not eat - this flare doesn't seem diet related. I actually think it is stress (got to love this economy).
 
How long does a flare typically last? Does it do any damage? When should I consider going into to see my doctor? Any words of wisdom and enlightment to the light at the end of the tunnel for this flare is appreciated.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/8/2008 3:11 PM (GMT -7)   
Some people have flares that only last a week or two, some a few months. Personally my longest flare was over a year before I finally got it under control a bit. Being in a flare can absolutely cause damage, in many ways. My last scope report stated I had loss of normal vascular pattern and a lot of scarring in my large intestine. I also have bone loss from being on predisone too much, and have to wear glasses full time now.
Basically it's in your best interest to try to get the flare under control as soon as possible but there's no way to know how long it will last, and if you can't seem to manage it, it's not your fault- sometimes it's just difficult to figure out. It differs from flare to flare as well and not every medication will work for you.

Anyway, good luck and feel free to post here all the time! Everyone is great and you should find some wonderful support to get you through this.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 3:17 PM (GMT -7)   
I would call the doc just to see what he thinks. Are you on any canasa suppositories? They help me to get under control. Some people are taking some prescription enemas, I don't know much about them, but maybe you could ask your doc to try something like that before prednisone. Good luck to you. I hope you have remission asap, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 3:18 PM (GMT -7)   
P.S. Have you looked into taking probiotics? Someone I heard of also said that eating Activia yogurt helps her get in remission. Take Care.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/8/2008 3:38 PM (GMT -7)   
Hi, if you think you're in a flare, you should probably contact your GI and see if you need to change any of your meds. As ediekristen said, flares vary for different people. My current flare has been going on since February and I'm still not in remission yet even with a bunch of med changes!

Probiotics may be a good thing to try since it adds good bacteria into your bowels. The Activia yogurt that bellski mentioned has probiotics in it (as do the DanActive drinkable yogurts). I'm sure you search probiotics on this site, you'll come up w/ many threads!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 7/8/2008 3:49 PM (GMT -7)   
Maybe it's too soon for me to be certain, but I think the probiotics are definitely worth looking into.  I've been on Culturelle for a little more than a week and I'm really beginning to feel good (I'm almost afraid to write that so I don't jinx myself!)
 
I've only been diagnosed recently, too, but it seems like a wise thing to begin working on a good relationship with the docs, so why not give him/her a call?  Being newly diagnosed, it's hard to get your mind around the idea of a chronic disease, but being chronic means there likely may be problems in the future.  Your doc should be able to help you figure this stuff out.
 
 
Female, 58, dx mild/moderate ulcerative colitis (left sided) 11/07
asacol 3 3x a day
culturelle
child's centrum
omeprazole 2x a day
oxazepam (anti anxiety) prn
 
** flare Jan '08 because I quit my meds in Dec '08 ... what a mistake!   
 
 
 
 


UCRichmond
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/11/2008 12:18 AM (GMT -7)   

I was on Pred for 2 weeks and have weened myself off at this point. I did speak with my GI, he said that this flare is normal and was to be expected, but that it should be less painfull each time during each flare. I have activa as well as a flora supplement, but wasn't sure if dairy is to be avoided during the flare. The flare is now 3 weeks and still running (no pun intended). There are days that are better than others (limited bowel movements and little blood) and some days, like right now are just bad.

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30101
   Posted 7/11/2008 12:25 AM (GMT -7)   
Hi..welcome to the forum!

I'm curious why you were given pred  and why you're weaning off the Asacol?
Were you given any rectal meds as well?  Something for you to consider rather than using pred for your future flares.

Where in the colon is your UC...limited or throughout?

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UCRichmond
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/11/2008 10:02 AM (GMT -7)   

Great questions. The pred was from my initial flare, I started taking it again and my GI suggested I take it for only 2 weeks. I was weening down to 6 Asacol per day (before the flare) to reduce the # of meds I had to take (its always hard to remember the mid-day dosage, especially when in remission) and I was doing great in remission.

I wasn't given any rectals from my GI. Do most people recommend them and do they reduce the flare duration? The UC is limited, can't remember where exactly.

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