Well, I got my remicade today...
They didn't even start the IV until 10:30am, (my appointment was at 9:30) because they had ANOTHER call from my insurance company about payment for it. If some of you don't remember, you'll have to read back on my one post about the trials and tribulations that I've gone through to get this drug that I need SO bad! Well, they called them twice to inform them that it will now be covered at 100%, because my insurance company sees it as an invasive(sp) surgery. So there's some good news! THey took my bloodpressure and heart rate and it was a bit high, and couldn't give it to me till it went down, they told me to get some bloodwork while I waited. Next, I had to run down three flights of stairs (I was THAT excited about getting it) to get my bloodwork, which was over 6 months behind (!) because they haven't checked ANY levels and I've been on Imuran since last year! Then I ran back UPSTAIRS and my bloodpressure and heart rate was SO high that I was in a 'danger zone' and they couldn't give me the drug! I layed down, had them run the IV and started to relax and breathe deep for a little while, and it got down to the normal level. It finally got into me and almost three hours later it was over. I had read 6 chapters in Rosemary's Baby, took a little nap and was on my way.
Once I got into my car, my face started burning and my body got really warm to the touch. SO, I had to get some benydril and am taking it along w/Advil for my join pain (per the doctor.)
All in all, I feel pretty good.
Pancolitis diagnosed in '99
Crohn's Disease diagnosed in '06
Medrol Dose Pack
Imuran 100 MG Daily
Asacol 1600 MG Daily
Flexeril 10 MG (four times a day for relaxation/stress relief)
Slow release Iron