Update on Infusion

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Just here...
Regular Member

Date Joined Feb 2006
Total Posts : 110
   Posted 7/8/2008 6:29 PM (GMT -6)   
Well, I got my remicade today...
They didn't even start the IV until 10:30am, (my appointment was at 9:30) because they had ANOTHER call from my insurance company about payment for it.  If some of you don't remember, you'll have to read back on my one post about the trials and tribulations that I've gone through to get this drug that I need SO bad!  Well, they called them twice to inform them that it will now be covered at 100%, because my insurance company sees it as an invasive(sp) surgery.  So there's some good news! THey took my bloodpressure and heart rate and it was a bit high, and couldn't give it to me till it went down, they told me to get some bloodwork while I waited.  Next, I had to run down three flights of stairs (I was THAT excited about getting it) to get my bloodwork, which was over 6 months behind (!) because they haven't checked ANY levels and I've been on Imuran since last year!  Then I ran back UPSTAIRS and my bloodpressure and heart rate was SO high that I was in a 'danger zone' and they couldn't give me the drug!  I layed down, had them run the IV and started to relax and breathe deep for a little while, and it got down to the normal level.  It finally got into me and almost three hours later it was over.  I had read 6 chapters in Rosemary's Baby, took a little nap and was on my way.
Once I got into my car, my face started burning and my body got really warm to the touch.  SO, I had to get some benydril and am taking it along w/Advil for my join pain (per the doctor.) 
All in all, I feel pretty good. 
So far... 
Pancolitis diagnosed in '99
Crohn's Disease diagnosed in '06
Currently on:
Medrol Dose Pack
Imuran 100 MG Daily
Asacol 1600 MG Daily
Flexeril 10 MG (four times a day for relaxation/stress relief)
Slow release Iron

Regular Member

Date Joined Apr 2008
Total Posts : 499
   Posted 7/8/2008 7:15 PM (GMT -6)   
Glad you finally got it done. I hope you feel better soon. What is a remicade infusion? Is it a steroid? I hear about so many things but mostly I understand what I am on. Thanks, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"

Veteran Member

Date Joined Mar 2007
Total Posts : 679
   Posted 7/8/2008 7:54 PM (GMT -6)   
I'm suprised they didn't give you benadril with remicade right off the bat.

Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 7/8/2008 9:56 PM (GMT -6)   
My center gives Zyrtec (because it makes fewer people too sleepy to drive home than Benadryl) and Tylenol before the infusion. Helps prevent reactions.

Lori, Remicade is one of the newer, "biological" class of drugs. It's classified as an anti-TNF. It interferes with the production of a specific type of cell in the immune system. It's generally used when 5-ASA's and immunosuppressants haven't produced a remission.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 7/9/2008 10:47 AM (GMT -6)   
Glad to hear things went well for you, Jared! I was taking Benedryl, but switched to a generic Claritin (Loratadine) so I wouldn't be so sleepy and trying to drive home wasn't such a good idea.

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 7/9/2008 1:00 PM (GMT -6)   
I always recevie Benadryl and Tylenol before my infusion starts. Luckily, I'm at home right now so one of my parents can drive me home. Otherwise, there is no way I could drive with the Benadryl drowsiness, especially if they do it through the IV.
p.s. Jared, thanks for the RemiStart info! I called today and it looks like I'll probably be getting rebates for my infusions.

Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 7/9/2008 8:35 PM (GMT -6)   
Interesting - I don't get anything besides the Remi... No Benedryl, no Tylenol... I haven't had any reactions - knock on wood!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
10mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

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