Cortenemas, anyone?

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AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 7/8/2008 7:51 PM (GMT -6)   
My flare is not getting much better.  Very painful while having a bm and afterwards for what seems like 15 minutes.  I did have bleeding a few days ago.  I've increased the canasa, and had 4/day on Sunday until GI called in the cortenema's today. 
 
My biggest question is this:   will I have the same yucky side effects as I did with predinsone?  I only have a script for a week times two.  I did a search on the site and found a few comments about the cortenemas not going into the blood stream so that the symptoms of hunger, thirst, energy, etc. were not as significant, or even really present. 
 
Just wanted to know from someone's recent personal experience!  Thanks in advance!!
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/8/2008 8:04 PM (GMT -6)   
Used the cortenemas for years with much success. None of the side affects I get with the oral pred.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Starting Immuran
Hydrocort/Rowasa/Vitamin E Enemas rotated
Probiotis/MSM/GreenTea/VitD+Ca/SuperDHA


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 7/8/2008 8:05 PM (GMT -6)   
I've been on the cortenemas plenty of times and never experienced the same side effects as the oral prednisone. They can be very helpful. How has the GI instructed you to do these? every night? every other night? should be tapered eventually. Good Luck, hope you see an improvement with them.
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 7/8/2008 8:54 PM (GMT -6)   
Thanks Dr. A and Munchkindd! I am to use one per night. Guess I will taper week two to every other night? Does that sound right? I wish I had been given these last year vs. prednisone if there are no side effects. Woopee!!! Thanks so much!
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed
Cortenemas, as needed
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/8/2008 9:46 PM (GMT -6)   
You won't get the same side-effects, if any at all from using rectal steroids because not near as much gets into the bloodstream compared to taking it orally...I swear by cortifoam, it's what works for me...never had a single side-effect from it even taking it for as long as a yr before tappering off of it.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


ESM NYC
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/9/2008 2:43 AM (GMT -6)   

BOOO to cortenemas!  yes, they seem to helping my flare up (combined with cortifoam in the AM)... they are causing me severe insomnia.. it is 439AM in ny right now!  i am so annoyed.. i am calling dr tomorrow with this and will likely either stop using them or use them 1/2x per week.  it is ridiculous- also i am noticing slight face puffiness (not as bad as prednisone, but i've only been using for about a week- so it could get worse AND slight lip hair growth- not fun on a 24 year old girl!).. also i am on the generic of azulfadine (sp?)... i take about 5 or 6 per day and 100mg of the generic of 6mp... sleep is very important to me and i am so angry that i am wide awake right now.... remicade was also once my wonder drug but sadly when i tried another go of it (after using it at the 0, 4, 6 week dose) a year later it caused me a severe allergic reaction and had to to be stopped :-(- did that happen to anyone else?

 

hope this cortenema report helps!  be well all.


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 7/9/2008 6:25 AM (GMT -6)   
Well, so far so good, after only one dose. Pb4, thank-you! ESM NYC, sorry to hear you are having troubles. I have a coworker with RA who is allergic to many of the types of meds similar to ours (methotrexate and humira) and I see the concern in her face daily. The docs are working with her on something different. Keep the hope and stay in touch with your doctor (daily, if needed! ha).
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed
Cortenemas, as needed
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/9/2008 11:56 AM (GMT -6)   
I've only ever used cortifoam once/day just before bed so that could be why I've never had a single side affect.

Good luck AlabamaBabs, stay on them until you feel that you're proctitis is finally under control, at least that long, before you tapper off of them.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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