Remission....How long??

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WindsofCreation
Regular Member


Date Joined Feb 2008
Total Posts : 30
   Posted 7/9/2008 3:03 AM (GMT -6)   
Has anyone been diagnosed, then had almost no symptoms whatsoever since being put on meds?? What's the longest period of time that you've been in remission?

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 7/9/2008 3:37 AM (GMT -6)   
I was lucky and got to enjoy most of my late teens and early 20's in blissful non-medicated remission. I was diagnosed at 16yo, in remission within 3 months and then didn't have any problems till I turned 25, then everything went to hell and hell is where I still am.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 3x Garlic oil capsules & 7mL Olive Leaf Extract twice a day.


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 7/9/2008 4:08 AM (GMT -6)   
I was diagnosed in June '95,took about six weeks worth of Asacol and Colifoam,then stayed in remission for just over a year med free.I can now only achieve such lengthy remission with Azathioprine,which I've fooled myself in the past into thinking I don't need(and proving myself wrong).I'm now staying on it for as long as it works,and praying I don't get side effects that mean I have to come off it.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 7/9/2008 4:14 AM (GMT -6)   
My gran was very unwell through her 30's and 40's and then had remission until she was 83 so you can definately have long remission periods. Myself, I have a flare once a year but having now been started on Azathioprine hopefully I will get longer periods of remission in between. As a number of members of my family have this disease it is obviously genetic so I'm hoping my disease follows in the same footsteps as my grans!!!!

32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 7/9/2008 6:44 AM (GMT -6)   
I was diagnosed in 2004 and was in remission until March of this year. I was taking Asacol.. altho not as often as I should have been because I felt.. healthy.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 7/9/2008 7:35 AM (GMT -6)   
I have just recently had a two month streak of remission and months here and there with remission, too. I take the meds throughout. since being diagnosed in March 2007. I consider taking the medications as "maintenance treatment."

I guess I would wonder how severe my flares would be had I not been taking the medications. When I started off my 2 month remission, I had a sigmoidflexoscopy ( I may have totally butchered that word). At that time, my GI doc said my colon looked all healed and suggested I go from 4 Lialda to 3 Lialda/day. I didn't want to risk getting a flare and I continued to take the 4 Lialda / day and now am having a flare!

Also, there are a few members on this board that will hopefully reply and share that when they went off their meds and enjoyed a remission for a season, or so, and then their UC had progressed. Just be careful and stay in touch with your doc about what meds to take and what meds to decrease or not take. I think it is a very fine line. There will many others who have a different outlook--the beauty of the board.

Stay well!
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Canasa suppositories 1000mg, as needed
Cortenemas, as needed
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/9/2008 8:00 AM (GMT -6)   
April, 2006 until now. Before that, I was in a five year flare which wasn't controlled by any combination of oral and rectal meds.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/9/2008 8:57 AM (GMT -6)   

How could you be diagnosed if you didn't have symptoms?

I was diagnosed in 1999 after years of struggling off and on with irritable bowel syndrome. Spent two miserable years flaring before I finally nailed down the right combination of lifestyle changes, natural therapies and maintenance meds that worked for me. I've pretty much been in remission since then.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 7/9/2008 11:38 AM (GMT -6)   
After a year of complete hell trying to get into remission, I finally did after a bowel rest. Its been two years. I'm still on meds but I would much rather take pills everyday and feel good.
Sam
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/9/2008 12:58 PM (GMT -6)   
I was diagnosed last year and I was in remission from mid-August (Asacol only took a couple weeks to kick in) until February.

Hmm, I've never heard about bowel rest for UC before!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/9/2008 1:00 PM (GMT -6)   
I think I was in remission through most of high school but honestly I really don't remember much of those years!! Which is really strange since it's only been 5 years since I graduated but I hated school so much I think I blocked those years out. I do remember days of being in extreme pain in class but I also remember drinking screwdrivers without much problem (vodka & OJ) which definitely couldn't happen nowadays. But a few months after I graduated I went into a year long flare and I haven't had much remission time since, just a few months here and there.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. 

Currently unmedicated and flaring :(
Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!

 
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 7/9/2008 1:19 PM (GMT -6)   
Comedy Dork- a bowel rest is when you're hospitalized and they hook you up to an IV and give you nutrition from bag. You aren't allowed to eat so that your colon has a chance to heal some. I don't think its very common but we were running out of options...
Sam
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

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