I also don't consider anyone on pred to be in remissiob. Acually, I've never used the word with my doctor and he hasn't either...interesting.
Controlling and treating is more my goal...I don't care if I'm on meds or not. My doc does want me on the lowest possible for long-term. I did try to be off the meds, but ended up back on...so maintenance is where I stay. I've been compliant from day one but have freedom to experiment ....ignorance is bliss but the pay-off has been huge.
I'd love for everyone to have my doc....but I have to consider that not all would possibly like him based on their situation and what can be done medically. I only know one person with UC who sees him, and it's possible that the big gun meds will have to come out for her.
10 bms a day is good enough?? yikes. But, there are some doctors who don't consider a patient good enough to "treat as a flare" until they bleed. I hadn't bled for over 14 years...I'd freak if my doc didn't deal with all degrees of inflammation, not just the most obvious. No wonder some patients suffer needlessly.
I'm fortunate that I can use 5ASA meds and am obviously NOT sensitive to salicylates of any kind so far. That could be part of the success I have because I do take aspirin as well with the reluctant OK of my doc...I've promised not to take ibuprophen for sure.
G2B...Food won't cause bleeding....the bleeding would mean that the lining is in a fragile state. Try not to make it about
food... do try rectal meds..can you not take 5ASAs?
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!