Posted 7/9/2008 1:48 PM (GMT -6)
As I was researching Remicade, I came across a few cases of people getting either Remicade-induced Lupus or full-blown Lupus even when medication was stopped. But they were all Crohn's patients--I didn't read of any UC'ers.
Is this because Crohn's is a different disease or b/c UC'ers haven't been using Remi as long as those with Crohn's? Or possibly a little of both?
Has anyone heard of other "scary" side effects to Remicade? I know lymphoma has only been show when Remi has been used w/ 6MP or Imuran.
How many people build up antibodies to Remi?
How long did it take for you to get into remission w/ Remi? My GI told me that it should start working after the 2nd infusion, and that if it doesn't, then it will most likely not work at all or as well. But there's still hope that things will significantly improve after the 3rd infusion, right?
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery