Carter's UC to Jpouch Photos & Story

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 7/9/2008 12:40 PM (GMT -7)   
Hi,
 
We are so excited that we have a guest blogger on our UC Story to J-Pouch blog!  Although the MAJORITY of UC people DO NOT have surgery (60-80% do not need surgery), if you are in that other 20-40% who might be thinking of surgery, you can check out Carter: 
 
Carter is 22 years old (had UC 8 years), and just had his j-pouch 'takedown' surgery (6 days ago) and he is showing his photos and his story of making the surgery decision, etc...
 
 
Please visit Carter's blog page, and send him a comment, I'm sure he could use the encouragement to heal well and keep sharing his story!
 
**Also, we sure hope some day to have a female blogger sharing her photos and story (it is the missing piece of the site since all we have are males representin' and these diseases don't discriminate by gender**
Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30085
   Posted 7/9/2008 1:38 PM (GMT -7)   
Having other experiences makes it less scary at the future possibility. I'm no where near that at this point, but never know what tomorrow may bring.

Thanks for sharing.
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1613
   Posted 7/9/2008 2:30 PM (GMT -7)   
Thank you for posting these stories. I am nowhere near surgery, but it is always in the back of my mind
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/9/2008 4:05 PM (GMT -7)   
Glad to hear you have more experiences! I got your message about being a guest blogger, but I'd have no idea what to say!! I'm pretty boring, hahah. If/when I do go for surgery though I will be sure to photograph and document everything so that I can being on your blog too.

Can't wait to get home and read Carter's story (I can't view the site at work, they have practically everything blocked)

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. 

Currently unmedicated and flaring :(
Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!

 
 
 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 7/9/2008 5:16 PM (GMT -7)   
That is great that someone would share their story to help others understand what is involved. Really awesome!
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 7/11/2008 10:45 AM (GMT -7)   

Hi Edie,  We totally understand, but if you ever want to share your experience with living with uc and pondering surgery, we'd love to have you join on!

 


Mark & Megan
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, February 21, 2018 9:55 AM (GMT -7)
There are a total of 2,931,631 posts in 321,662 threads.
View Active Threads


Who's Online
This forum has 160377 registered members. Please welcome our newest member, Meg1301.
393 Guest(s), 13 Registered Member(s) are currently online.  Details
BlakeAlexander, TheIsomotion31, Michael_T, Scaredy Cat, cakegirl, Meg1301, Starlight*, Sherrine, TxBart, Vin218, sierraDon, OriolCarol, Szabo246