My neurologist called me back today, as he has been out of town until today, and he upped my seizure meds. So, I feel good about that.
I called my GI yesterday and asked for a faster taper schedule and to see if I could start supplementing with the steroid enemas because I read that very little gets into your bloodstream with the enemas.
Yesterday, the nurse told me she talked to my GI about the steroids and the seizure and they really don't think they are related. She asked me what my neurologist said about it, and I told her that I hadn't talked to him yet. I explained to her that it's for my peace of mind that I get off of them quicker than the scheduled 6 weeks.
And I shared my point-of-view about the irony of not having a seizure for three years and then having one now. And I also told her that my UC symptoms are very minimal, etc. I just wanted to get on the enemas to keep it that way because I am afraid of going south again since I am tapering off quicker.
Anyway, she went on to say that if the steroids caused it, she thinks I would have had one within a couple of days. Okay, my opinion on that is that I am on medicine for seizures, and it probably took a while for the steroids to build up in my system. Then she said that I would have had another one by now. My opinion on this is that I started tapering down.
So, the nurse was going to talk go my GI again yesterday and call me back today. Guess what? NO PHONE CALL FROM MY GI TODAY!!!!!!!!!!
You can bet that's the first number I dial in the morning!
Thanks for listening!
40 mgs of Pred
50 mgs of Imuran
1 Canasa at night