Remicade Tomorrow Morning

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BrianofMD
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 7/10/2008 1:57 PM (GMT -6)   
Well I was hopsitalized for a few days because I had a high fever and was getting very ill while on 60mg of prednisone. My doctors wanted to clear me for remicade ASAP. My first infusion will be 9:30am tomorrow. Im finally going in a week later then expected. I hope this works. End my almost two month flare. Also it seems Lialda made my symptoms worse and after my Flex Sig i switched back to colazal and have half the bowl movements a day.
 
Wish me luck.
 
- Brian
 
 
8:30am
-1.2 Gram Lialda x2
-40mg Prednisone
-Multivitamin, Calcium Supplement, Flora-Q Double Strength Probiotic
Symptoms since 15, diagnosed 16th birthday. Currently 17
status - Flare


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 7/10/2008 2:03 PM (GMT -6)   
I'll put it to you this way, before remicade I came to this board daily.
 
now I come about once a month out of guilt.
 
wonderdrug!
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade


BrianofMD
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 7/10/2008 2:07 PM (GMT -6)   
Ever since I have found this forum I set it as my homepage. I really have no been able to expercise lately at all since My flare. I want to get back in shape so after my remicade it supposed to make you feel better in a matter of days so I hope I can get back to my old self. Remission is very missed. Normal Bm's will be a happy sight.
 
My doctor is going to put me on remicade for about a year or less then switch to Imuran doses. Is this a good idea and has anyone had this before a Remicade to Imuran dropdown?
8:30am
-1.2 Gram Lialda x2
-40mg Prednisone
-Multivitamin, Calcium Supplement, Flora-Q Double Strength Probiotic
Symptoms since 15, diagnosed 16th birthday. Currently 17
status - Flare


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/10/2008 2:50 PM (GMT -6)   
Remicade doesn't always work the quickly, Brian. A lot of people don't see a significant difference until after the second or third infusion - that would be 3-6 weeks from the start of treatment if the recommended protocol is being followed.

My doctor uses Remicade as a maintenance medication, and only starts it if you've already failed 5-ASA's and immunosuppressants.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/10/2008 10:03 PM (GMT -6)   
Brian, I hope Remicade works that quickly for you. But I've had two infusions and haven't had any significant improvements--I'm hoping 3rd time is the charm! My GI said that I'll be using Remi "indefinitely." However, that could be because I had a serious reaction/side effects to 6MP, so I don't have the option of stepping down to it.

Lialda made your symptoms worse? Hmm, I switched to Lialda the day I started Remicade. I wonder if that could be "blocking" any Remi improvements...

Anyway, good luck tomorrow!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 7/10/2008 10:32 PM (GMT -6)   

Good luck Brian!!

I have had 4 infusions I think.   But I"ll tell ya,  the remission i was having just a few weeks ago,  was started the day after my first infusion.  I got my first dose on the last full day of my hospitalization.   Surgery was my next option (have even already seen a colorectal surgeon) but now have been relying on the remi.   I was having a great remission,  I had even forgot how horrible it felt to be in a flare,  until about a week and 1/2  or so.  I usually have some bowel/gut issues when I have my monthly period,  but as it goes away,  so do the issues,  until this last time.  It just kept getting worse.  I don't get my next remi until end of the month.  I'm so scared to end up back in the darn hospital...Today I started myself on the steroids again,  just hoping it does the trick..anyways,  the moral of this whole story (sorry,  got a bit long winded)  is that the remi can work fast, and work wonders!!  Good luck!!


                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Currently in complete remission thanks to Remicade!!)
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 20 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 7/11/2008 5:23 PM (GMT -6)   
I've been on Remicade every 5-6 weeks for a year now. It hasn't gotten me to 100% remission, but I have been able to get off the Prednisone after nearly two years (and an osteopenia diagnosis, anemia, weight gain, you name it!). So it's been a huge improvement if not a complete success. Many people here are totally normal on Remi, good luck!!

Meesh
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008
8 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08
Current meds & supplements: Lialda, 4 tabs in the morning; Protonix; Lexipro 10 mg; Xanax as needed; Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07)


BrianofMD
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 7/11/2008 10:10 PM (GMT -6)   
Besides the fact that i had to get stabbed in three veins before the IV even went through it went well. Ive been a bit groggy today but otherwise my stomach pains are down and have only gone twice, once in the morning and one in the afternoon. For the first day maybe im being lucky but so far so good.

-750mg colazal 3x3 Daily,-40mg Prednisone
-Multivitamin, Calcium Supplement, Flora-Q Double Strength Probiotic
Symptoms since 15, diagnosed 16th birthday. Currently 17
status - Flare Since Mid May
 

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