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Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 7/12/2008 11:02 AM (GMT -6)   
Hi just wonering how many of us have jobs full or part tme and how understanding are your employers. I work part time in a care home doing 12hr night shifts and my employers are very understanding and always ask how i am they also let me change shifts with no hassle and take time off when needed i think i am quite lucky.I also have a husband 3 children a dog a cat and rabbit. tongue
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 7/12/2008 11:35 AM (GMT -6)   
I work full time in a human services program. My agency has been very flexible with me, even allowing me to work from home here and there as needed. For instance, Monday I get my Remi infusion, which will pretty much kill the morning. I usually take my laptop and work part of that time, then I'll come home and work from my recliner chair. I'll be able to work, but tired and will function better if I'm comfortable. My staff knows they can reach me by e-mail or cell phone, the e-mail things to me for review. It's been great, I've never had to miss more than a day or two once in a while due to my UC. (I must admit, though, for five years I went to work on a lot of days when I could barely lift my foot off the ground to take my next step.)
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Regular Member

Date Joined Apr 2008
Total Posts : 499
   Posted 7/12/2008 12:31 PM (GMT -6)   
I work full time as a teacher. My principal this year was wonderful as I ws just diagnosed. I'll have a new principal this year. I'm sure she'll be good. I hope not ever to have to stop working I absolutely love teaching and I love the insurance. Good question. I imagine that the people using this sight are pretty severe cases mostly, and those with U,C. that are doing fine probably aren't on here on a dialy basis. So, on this sight, there is a bigger percentage of people that might not be able to work. It's a good question.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 7/12/2008 12:48 PM (GMT -6)   
We have a gun and knive store that my husband runs I only work on a as need basis. which is good because I normally cant get out of the house before noon. But I also have alot of other health issues. I think some jobs are more understanding then others. I use to do factory work and u where only aloud so many sick days and they really frowned on very many bathroom trips it was all about production with them.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

Veteran Member

Date Joined Mar 2007
Total Posts : 4509
   Posted 7/12/2008 2:37 PM (GMT -6)   
I work full time at a weekly newspaper. I hate my job, but I do have good insurance through it. I was diagnosed shortly after first getting hired there and my boss wasn't very understanding when I had to take about 3 weeks off because I was so sick I could barely even walk.
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day

Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil;
<FONT color=#800080>Viactiv; Zinc supplement every few days

Regular Member

Date Joined Jul 2005
Total Posts : 25
   Posted 7/12/2008 3:41 PM (GMT -6)   
i work part time as a Pre-school teacher.My boss is a real piece of work...could care less about me & my uc.In fact, she is making me get a dr. note each time I call in sick. We only get 3 days too. I told her that with uc you can feel sick &  that's the beauty of the disease ..but she could care less! And sometimes you have just a sore throat or headache which doesn't warrent a trip to the dr.

Regular Member

Date Joined Jun 2008
Total Posts : 57
   Posted 7/12/2008 4:59 PM (GMT -6)   
I work full time as a teacher (although had been off for several months on leave b/c of UC - will return in September). My principal has been really great - letting me come in late, leave early, whatever I needed to do. Having an understanding boss is the only way I feel that I've been able to work full time.
*Diagnosed 10/07 (6 months pregnant w/ 2nd baby)
*Currently in remission
*Lialda (3 x a day)
*Calcium, multivitamin, Metamucil, iron

Veteran Member

Date Joined Aug 2007
Total Posts : 650
   Posted 7/12/2008 10:46 PM (GMT -6)   
has anyone noticed how many of us are teachers or human services or just care providers

Diagnosed with Ulcerative Colitis March, 07

Medications:]Colazal 3 pills 3x a day</STRIKE>

<FONT color=black> Prednisone

Lialda - 2 pills in the morning w/ food.

Regular Member

Date Joined Jun 2008
Total Posts : 32
   Posted 7/12/2008 11:42 PM (GMT -6)   
i work full time for the city and they couldn't have been more generous or understanding when i got sick and was off work for 2 and 1/2 months. i was in the hospital for 6 weeks of that time. all the employees donated sick time to me and i never missed a pay check. its amazing to be able to work for such amazing, caring people. i just went back to work a week and a half ago and it feels great. i also go to school and it takes a lot out of me but i'm stubborn and don't want to stop living because of this "crap"
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 25mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)

Regular Member

Date Joined Feb 2003
Total Posts : 51
   Posted 7/17/2008 12:41 PM (GMT -6)   
I work as a reporter for a weekly newspaper - but when I got sick - I worked in day care!!! Kind of odd how that's a theme here.

Day care (I was a college student at the college's day care) was understanding, but of course confused about the illness. At this job, I didn't mention it to anybody until my doctor suggested it might make me feel better since I panicked if I was running late due to "nature" calling.

But I'm flexible already. I can work out of the office or at home. Doesn't matter. I think it's helped, too, that I'm good at what I do and they found out about my illness mid-employment, so they know I'm a hard worker.

I always wonder how people with jobs where they punch in and out deal with something like this. I used to work at Pier One while I worked at the day care and it was hell - not b/c of the people but because you have no freedom to get away and use the john.

Regular Member

Date Joined Jun 2008
Total Posts : 197
   Posted 7/17/2008 1:50 PM (GMT -6)   
I was working as a computer help desk tech when I was dx. It was very rough for me for a long time because I would get up 2 hours early so I would have 30 minutes for the john, 1 hour to eat shower and dress then another 30 minutes for the john after eating before I left. I managed to keep my schedule only because a co-worker gave me rides to and from work. I was too fatigued to stay awake driving. Altho I didn't physically tax myself working there were more than one occasion where I would be stuck troubleshooting a call doubled over in pain from holding my bowels until I could finish the call.

I no longer have that position but am still with the same company. I now administer the health testing schedules for our animals. I live closer to this office and am salaried so it's nice when I have bad mornings I can run a little late and it's not amplified by a 30 minute drive because I only live 2 miles away. Makes lunch nicer too because I can go home, relax for a while, use my "comfy john" and eat home cooked foods instead of fast foods. My boss also has a chronic health issue so he is very understanding of how things can get out of your control and will let me work from home with my laptop on bad days.
~ Mom of Nathaniel aka "Peanut" 18m (6/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV on hold (6 weeks free of IV, check in August)
- Allergies - Zyrtec 10mg 

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 7/17/2008 2:16 PM (GMT -6)   
I have been at the same job since I was dx'd for over 8 years, I have had to take a few unplanned days off here and there for my UC, but no more so than anyone else does for their sick days and kids sick days. I have not had to take any extended time off, so I don't know how that would go, I can technically work from home though and my last boss was totally understanding letting know that I could work from home whenever I need to. My new boss I don't think would be as understanding but if I get my job done then I don't think it really matters. In the past two years I have gone through 3 direct reports and still have like 6 dotted line bosses. However, the people at my co are great but not super healthy, it seems a lot of people have needed to take time off here and there for illness/family related illness things and co. has been very good.

I do service sales/mktg for scientific instrumentation. I pretty much like my job.
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 30mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Regular Member

Date Joined Oct 2007
Total Posts : 348
   Posted 7/17/2008 2:56 PM (GMT -6)   
I'm self employed. I run a licensed daycare from my home, have done this for 21 years now and am currently looking for a "real" job. I've had anywhere from 2 - 6 children at a time between the ages of 8 weeks and 6 years old. I am so burned out with this. Alot of hours and you don't get to "leave the building" for lunch or a break, heaven forbid doctor's appointments. (I basically have kids from 7:00 a.m. til 5:30 p.m.) What a pain as far as that goes, but it's been pretty convenient with my UC. When I was first diagnosed I worked at a bank........
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 7/17/2008 10:43 PM (GMT -6)   
I'm having a hard time trying to figure out what career I want to go into b/c of the UC. It's driving me crazy, mainly b/c my parents keep bugging to figure out what I want to do. *sigh*

I'm glad all your jobs are pretty flexible!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery

Veteran Member

Date Joined Apr 2007
Total Posts : 1366
   Posted 7/18/2008 5:49 AM (GMT -6)   
I work 40 hours a week at a hospital as a secretary... I really love my job and it's pretty UC friendly I guess. I mean, if the phones are ringing off the hook it's hard to just get up and go to the bathroom, but the phones usually aren't THAT bad. And if I do go and it rings, either someone will answer it or they'll call back, it's not that big of a deal. Since it's the operating room, I don't ever talk to patients or anything, just the doctors or vendors, and 99.9% of the time they aren't there to talk to me anyway. So they don't really miss me if I'm MIA.

Regular Member

Date Joined Feb 2007
Total Posts : 344
   Posted 7/18/2008 10:02 AM (GMT -6)   
i'm a teacher. i still haven't told my principal about my uc - some of the other teachers know. noone has complained when i have slipped out upon occasion to use the potty, or asked other teachers to keep an eye on my class for a few minutes,
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid
Current meds: Asacol 3 - 3x, Aciphex (acid reflux), prednisone 10 mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density), canasa

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