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milkman
New Member


Date Joined Jul 2008
Total Posts : 19
   Posted 7/13/2008 4:22 PM (GMT -6)   
Roller Coaster ride continues for my 23 daughter,We tried every medicine for the last 2 years with only steroids working,opted for surgery on 7/8/08,Good days and bad so far,she hasn't kept solid foods down,As of today they put tube down to stomach,They believe there may be blockage,How can Ya have blockage if u havenot eating anything solid since 7/6/08.Her spirits are ok she still is hanging in there.We were hoping to walk in a UC/Chrons walk 8/9/08 time will tell.Anyone deal with blockages, do they need to back in? .Again, have read posts for long time never posted till recently.She believes she made the right decision, anyone dealing with this illness has to have a thick skin

bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/13/2008 5:31 PM (GMT -6)   
I'll keep you both in my prayers. I don't know about the blockage. Make sure she is O.K. berfore doing a walk, otherwise consider a wheelchair for the walk? See what the doctor thinks. Good luck. Keep on keeping on! (O:
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/13/2008 5:45 PM (GMT -6)   

IThis sounds more more like an ileus than a blockage.  But yes, blockages can occur in the first year post surgery.  I had about 3 partial blockages and they all resovled on their own.  She will learn to manage blockages but I will tell you the best thing to do is 1. stop eating until it passes, 2. drink plenty of fluids, and 3.  walk to keep the motility action going. 

Her first six weeks will be fraught with periods of ups and downs.  Do not get discouraged, this is complex surgery with a long recovery.  I encourage you to go to www.j-pouch.org where you will meet others.  Whether she is having a permanent ostomy, a j-pouch or k-pouch she will find support on that site.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


milkman
New Member


Date Joined Jul 2008
Total Posts : 19
   Posted 7/13/2008 7:33 PM (GMT -6)   
Thank You for your reply I have seen your replies and were hoping you would be arouind.My daughter spirits are good .I know she made a good call here,based on what we have dealt with.She tried every medicine from asacol,colazol,lialda,mp6{made her sick]methotrexatenad finally humira,steroids only thing to provide any relief.This board has been a asset in this battle.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/13/2008 8:07 PM (GMT -6)   

And with you daughter's commitment to the surgery and her attitude she will no doubt manage through the recovery.  I think the recovery is harder on the family than it is on the patient, especially when the patient is your child.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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