thanks everyone, your responses meant so much to me. I did cry in the waiting room, got myself all worked up but having my husband there was a help and managed to keep it together in the appt.
we think that the Enalapril I was on was not helping me and that the Tekturna that I switched back to is, though it does not show up in my lab results yet. My proteins went up to 7.5 and albumin down to 2.5, not what I was hoping for (last time was proteins 2.6 and albumin 3) but..............I go back in 7 weeks so I hope to see improvement then. If not he wants to put me on Cellcept (next step drug) and take me off Imuran, he does not want me on both at the same time (they both suppress the immune system). Well, that poses a problem taking me off Imuran not sure what they want to put me on for my colitis, they "think" the Cellcept would help (he already talked to my GI) but I am going to get a second opinion b/c I don't want to flare again.
So I am just going to try to be really positive these next 7 weeks and hope this will work but in the meantime I will also seek out a 2nd opinion on what I can be on w/the Cellcept or if that could be enough? At least I can taper down prednisone again = )
I am going to start a new post to see if anyone has taken Cellcept for their colitis w/any success?
Chicubs - glad you made it over here!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!