please help me compose myself for my Dr. visit today

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/14/2008 12:57 PM (GMT -6)   
going to see my Kidney Dr. today and I am really hoping for good news, and I realized that I am on the verge of bawling my eyes out if I don't hear good news.  Luckily my husband is going w/me today and I will prep him to ask the questions in my notebook but I don't want to sit there w/my eyes as red as tomatoes w/snot coming out my nose.  I have carefully thought about what I want to say whichever way my lab results come back as.
 
Can anyone help me not cry, any suggesstions on how you handle it?  Sometimes I try to dig my nails into my palms but that only holds back the tears for a minute or two.
 
Should I call the Dr.'s office and explain that if they tell me on my way there then I should be all done crying by the time I see the Dr.........or is that insane?  (plus am on 40mg of pred...my moods have been pretty stable but it is hard to keep them that way).
 
TIA!
 
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/14/2008 1:03 PM (GMT -6)   
Hopefully yoy will have no reason to cry. If it were me, I would just pray for strength right before I went in and during. It is O.K. to cry, you are only human. I am just hoping there will be no reason to cry. Keep us posted. Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/14/2008 1:16 PM (GMT -6)   
I think if they give you bad news, they will certainly understand if you cry.. I know you might feel embarrassed but you can't help it! Just say "I'm sorry, it's the prednisone". I hope they don't give you any reason to cry but don't feel bad if you do. Since your husband is there, maybe just have him listen to the doc and take notes while you just tune out a bit and focus on keeping the tears in.

I really hope everything goes well though and please let us know!!!

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. 

Currently unmedicated and flaring :(
Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!

 
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/14/2008 1:33 PM (GMT -6)   
Oh Beth, you just cry if it comes to you! I am extremely sensitive and cry everywhere. When I was younger it embarrassed me but now that I am older I don't care anymore. I cry at the vet's office for no reason, the doctor's offices, I cry when I get frustrated with service or yelled at by strangers. Just let it out; certainly all doctors know that bad news is very hard to deal with.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 7/14/2008 1:36 PM (GMT -6)   
you wont be the first to cry in there office im sure, but hopefully it will be really good news. got my figures crossed for you.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/14/2008 6:04 PM (GMT -6)   
How did it go today? Let us know when you get a chance.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 7/14/2008 9:46 PM (GMT -6)   
I hope everything went ok for you.

-Adrienne
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


ChiCubs7
Regular Member


Date Joined Jul 2008
Total Posts : 24
   Posted 7/14/2008 11:03 PM (GMT -6)   
Hi Beth,

My first post over here. I hope your nephrologist gave you good news.
Ken

Left Sided Ulcerative Colitis diagnosed Jan 08
Minimal Change Disease diagnosed Feb 06


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/15/2008 8:42 AM (GMT -6)   
thanks everyone, your responses meant so much to me. I did cry in the waiting room, got myself all worked up but having my husband there was a help and managed to keep it together in the appt.

we think that the Enalapril I was on was not helping me and that the Tekturna that I switched back to is, though it does not show up in my lab results yet. My proteins went up to 7.5 and albumin down to 2.5, not what I was hoping for (last time was proteins 2.6 and albumin 3) but..............I go back in 7 weeks so I hope to see improvement then. If not he wants to put me on Cellcept (next step drug) and take me off Imuran, he does not want me on both at the same time (they both suppress the immune system). Well, that poses a problem taking me off Imuran not sure what they want to put me on for my colitis, they "think" the Cellcept would help (he already talked to my GI) but I am going to get a second opinion b/c I don't want to flare again.

So I am just going to try to be really positive these next 7 weeks and hope this will work but in the meantime I will also seek out a 2nd opinion on what I can be on w/the Cellcept or if that could be enough? At least I can taper down prednisone again = )

I am going to start a new post to see if anyone has taken Cellcept for their colitis w/any success?

Chicubs - glad you made it over here!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 7/15/2008 9:31 AM (GMT -6)   
Did you arrange an IBD consult in Boston yet? That's likely the best move to make if your neph thinks you'll have to get off Imuran. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/15/2008 10:43 AM (GMT -6)   
Hi Old Hat,

That is my very next step = )

I am going to go to my primary tomorrow and get a referral to the Chrons and Colitis Center in Boston.

I'm excited to get a second and see what other treatments are out there.

I did a quick search and Cellcept has been used for UC though there are reasons why it is not, my quick understanding is that it is not as helpful and is a more dangerous drug.....makes sense to me. But my research for MCD is that Cellcept is my next step. So I just have to work it out somehow.

thanks again Old Hat and everyone else. At least I am not flaring right now, that is helping me be positive!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 30mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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