Hi, im so sorry for all you have been dealing with.
I was not dx w/ UC (and was not one uc meds) when i had my first son. (now age 4 1/2). During his pregnancy, I had alot of preterm labor issues (however my first flare ever was not until about 2wks till i delivered him ). I went into labor 12wks early and was given large amounts of morphine, magnesium sulfate (to stop labor), brethine/terbuterline, and antibioitcs. I delivered him almost 2mo early. From an anatomy standpoint, he was fine, (normal need for lung maturity, learning to feed, ect). When he turned two, we were finding signs of speech delays, fine and gross motor delays also. He spent 2 yrs in intensive threapy (2-3x a wk). He is mostly caught up now and is doing great!
The reason i tell u all this, is that when he was being dx , i searched high and low to try to find something tangable to say "this is what caused his delays", of course, prematurity could be the cause, or it could be the meds i was given to keep him in, or it could just be this way "because".... I finally stopped searching for the answer, as i knew i would NEVER get it, and put my heart into helping him...It sounds like you are not in denial about what your son needs, and that is a great thing! To many people turn their heads and say "not my child".....
After reading ur story, i wonder more about the meds that u got to stop labor (do u remember the names of it)? For me, even if it was those meds, it was more risk to deliver my son 12wks early than to give him the meds....I just try to let it go and move on....I can say that my sister (who has NO medical medical problems), who delvered fullterm had a daughter w/ severe delays(much worse then my son)......it's the luck of the draw i think and you sound like a strong woman, and a great mother! I wish u the best!!!!! Good luck w/ therapy!!!!!! Start it asap!!!
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day