Colazal, Pregnancy, & UC

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mammaof4
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/14/2008 4:13 PM (GMT -6)   
This is going to be a bit long but please bare with me.....I am in dire need of some help/answers.  I am the mother of 3 young boys and 3 months after my 2nd son was born I was diagnosed with UC, at the time only 10 cm of my colon was in involved, 3 months later, I found out that I was pregnant with my 3rd son who will soon be 2 (Aug 6th).  Before I knew that I was pregnant I was taking Colazal to keep my UC under control.  I was very sick off and on during my pregnancy, at one time I was in the hospital for a couple of days to stop my labor from being so dehydrated.  I continued to take the Colazal off and on throughout my pregnancy so that I wouldn't have early labor. 3 months after delivering my 3rd son, I went to see a new doctor, when he scoped me, he found that the UC had spread like wildfire throughout my entire colon, I was hospitalized and started treatment to get into remission.  I tell you all of that to get to my question.......my son was born with a dimple just above his rectum (they thought that he may have Spina Bifida, after a MRI, we found that the dimple was closed), 2 months later he was hospitalized for a week with RSV, 2 months later we found out that he had trachia mylasia (which is a narrowing in the esophogus), which later corrected itself and he outgrew that.  We have had multiple ear infections and our lastest discovery is that he has a develpmental delay, which is going to lead to years of therapy and a hard road ahead for us.  Is there anyone else that took this drug while they were pregnant and if so have you had any medical issues at all with your child???  I have 2 perfectly heathly and very smart boys prior to my last pregnancy and I can't help but think that me taking this drug has contributed to some of the issues.  I don't tell any of the women that are pregnant and taking this med to scare you, I am just in need of some answers and if I can prevent any mother from going thru what I have been thru, that is my goal.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/14/2008 4:33 PM (GMT -6)   
Colazal is a category B drug, meaning that they haven't had any significant studies to determine if it can interfer with pregnancy or not. But it was shown to not have any adverse reaction in animal studies. There is not much known about Colazal and infant health unfortunately. So it could very well be that the Colazal caused some problems with your son. I was on Asacol with my daughter and even though the docs told me it was safe as well as the manufacturers of it, she was born healthy but she has decalcification in her teeth. Which we can not determine what it is from since she was always an otherwise healthy child.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7~1st epidural injection 7/15
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mammaof4
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/14/2008 4:41 PM (GMT -6)   
That is my concern that maybe it shouldn't be a type B drug.  They can't really perform extensive studies on pregnant women without there being some risk to the baby.  I was told that it was "safe" but is it "REALLY SAFE?"  ya know.  I'm just curious if anyone else has had any medical issues with there children.  VERY CURIOUS!!!

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 7/14/2008 6:53 PM (GMT -6)   
Hi, im so sorry for all you have been dealing with.

I was not dx w/ UC (and was not one uc meds) when i had my first son. (now age 4 1/2). During his pregnancy, I had alot of preterm labor issues (however my first flare ever was not until about 2wks till i delivered him ). I went into labor 12wks early and was given large amounts of morphine, magnesium sulfate (to stop labor), brethine/terbuterline, and antibioitcs. I delivered him almost 2mo early. From an anatomy standpoint, he was fine, (normal need for lung maturity, learning to feed, ect). When he turned two, we were finding signs of speech delays, fine and gross motor delays also. He spent 2 yrs in intensive threapy (2-3x a wk). He is mostly caught up now and is doing great!

The reason i tell u all this, is that when he was being dx , i searched high and low to try to find something tangable to say "this is what caused his delays", of course, prematurity could be the cause, or it could be the meds i was given to keep him in, or it could just be this way "because".... I finally stopped searching for the answer, as i knew i would NEVER get it, and put my heart into helping him...It sounds like you are not in denial about what your son needs, and that is a great thing! To many people turn their heads and say "not my child".....

After reading ur story, i wonder more about the meds that u got to stop labor (do u remember the names of it)? For me, even if it was those meds, it was more risk to deliver my son 12wks early than to give him the meds....I just try to let it go and move on....I can say that my sister (who has NO medical medical problems), who delvered fullterm had a daughter w/ severe delays(much worse then my son)......it's the luck of the draw i think and you sound like a strong woman, and a great mother! I wish u the best!!!!! Good luck w/ therapy!!!!!! Start it asap!!!
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


mammaof4
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/14/2008 8:57 PM (GMT -6)   
Thank you so much for your encouraging words. They didn't really have to give me any meds to stop my labor, it was more so just getting me rehydrated if I remember correctly but you know what, I'm going to check on that.

I have a lady coming tomorrow from the state to set up a plan for my son to expediate his therapy.

Thanks again and I am SOOO glad that I found this website. It is so hard for my family (husband, mom) and friends to understand this disease and now I have found a place to talk and people actually understand.

PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 7/16/2008 8:41 AM (GMT -6)   
I was on Colazal through my pregnancy and nursed while on it. I delivered after induction the day after my due date. I did have complications with the pregnancy but they weren't UC or medicine related. He actually had a 2 vessel cord and an incomplete placenta, they don't know how I carried the pregnancy at all let alone to term. That all being said he's healthy and actually advanced for his age, other than verbal communication which is exactly where he should be, he's functioning at a 2-3 year old's motor skill level. So no I had no complications taking Colazal while pregnant or nursing. Like PP said it's the luck of the draw.
Kim
~ Mom of Nathaniel aka "Peanut" 18m (6/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV on hold (6 weeks free of IV, check in August)
- Allergies - Zyrtec 10mg 


mammaof4
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/16/2008 9:42 AM (GMT -6)   
That makes me feel SOOOO much better........however I don't believe in luck, I think more along the lines of.......everything happens for a reason but with that being said...........I'm starting to think that it could be more of the disease then the medication. However, I am still researching. Thank you for your reply.

PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 7/16/2008 10:00 AM (GMT -6)   
UC can cause some funky things to happen during pregnancy. I started researching while I was going though fertility treatments but had to stop because I had myself so scared looking at the worst case scenarios about what "could" happen that I nearly gave up. They were low percentages of instance but I kept thinking they were ALL going to happen. (researching while suped up on hormones is a BAD idea LOL)

I wish you the best of luck with your son and dealing with your UC.
Kim
~ Mom of Nathaniel aka "Peanut" 18m (6/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV on hold (6 weeks free of IV, check in August)
- Allergies - Zyrtec 10mg 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, August 15, 2018 1:34 PM (GMT -6)
There are a total of 2,992,974 posts in 328,004 threads.
View Active Threads


Who's Online
This forum has 161210 registered members. Please welcome our newest member, bil391.
304 Guest(s), 11 Registered Member(s) are currently online.  Details
Froggy88, phsinvent, 07kr5, lymenc4, Gemlin, AtomAnt, Michael_T, Garion, Darla, Bob Ravenscroft, iPoop