First, I want to say I read the forum every day and appreciate all the information and experiences everyone shares. I have posted in the past, but not very often. Here are my concerns and look forward to your opinions.
I have been tapering my prednisone the last few months. My GI had me lower the dose 2.5 mg every two weeks until reaching 10mg. He then had me taper 2.5mg every four weeks. I just started 5mg today. I am also on Humira (1 shot every other week). The taper had been going well until the last few days. I average 1-2 BMs per day with occasional (1 time per week) blood on the last of the BM. GI feels that it's my hemorrhoids. I have a tendency to push hard towards the end.
Anyway the last few days I have seen blood each morning. I phoned my GI and he again felt it was the hemmies and said I should start on the 5mg today. Well, today I have had 3 soft and formed BMs. I have not had 3 BMs in a day since early May.
Do you think I am starting to flare since my pred has dropped to 5mg? Am I worrying too much? My GI says 1-3 BMs is normal. Whenever I see blood, I worry even though I have had hemmies diagnosed since my first scope in 2006.
Also, how do you stop yourself from worrying all the time about
the next flare? I have had only one flare (May-June 2007). Since then, I have been doing fine, but have been on pred the whole time. This is the closest I have been to getting off the stuff.
UC since April 2006; first flare May 2007, hospitalized 28 days.
Remicade infusion brought symptoms under control, but caught MRSA infection from PICC line.
2nd Remicade at 14 weeks, severe reaction, no more Remicade.
tapering prednisone (10mg/day down from 60), started taper 4/10/08 (2.5mg every two weeks)
Humira - 1 shot every two weeks (since December 2007)
Calcium - 2x per day