I had my 7th Abatacept infusion last week, and so far, everything seems to be going well.
I am 3 months into the maintenance period, so I have 9 more months to go before I go onto the open-label.
My symptoms havent really changed much in the last 2 months, which is good as I am still having around 3 or 4 BMs a day with no blood. Which for me, is as good as it gets.
Still get fatigued though not as much as before and the back pains seem to have disappeared too.
Abatacept Trial since Feb 2008 (Maintenance Period)
Back on Pred - 3mg - Steroid Dependent :-(
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks (Stopped working)
Aloe Vera Lily of the Desert Juice Gave me the worst D !
Primadophilus Reuteri Probiotic