Hi to all,
I’m a newbie and if this has been covered before (and I dare say it has) my apologies….
Anyhows, here’s my question to you all.
I’ve been reading posts here for quite a while and there have been so many drugs mentioned
that it’s hard to know which are effective.
There is prednisone, azathioprine, asacol, pentasa, remicade, Lialda Colazal, Rowasa salazopyrin, Imuran. etc, etc, etc .
Now I know that these drugs can be broken down to Sulfasalazine, 5-ASA, steroids and immunosuppressants and of course I understand that
everyone is different, but I’m really interested to know which drugs and treatments readers here have found most effective.
This would not only help new and old readers alike but is also of particular interest to me because many of the drugs I’ve read about are
unavailable where I live and I wonder if some of the drugs used here might be of benefit to readers to this site or if they are just old and no
longer used in the west.
Whew, OK to cut to the chase I live in Japan and was diagnosed with (mild to moderate) left-sided UC in early 2007. First, I was put on Pentasa
enemas and later Pentasa tablets and this was very effective for around 6 months or so but gradually my symptoms worsened. I tried
acupuncture and increased Pentasa doses but to no avail. Finally I was admitted into hospital with extremely severe UC. As in the west they
tried steroids first Predonine (predisnolone) and I was given a new treatment with a type of dialysis called G-cap (where they removed the
most harmful white cells from my blood) twice a week. Sadly, this too was ineffective.
So, I switched hospital and was put on an IV drip and treated with Taclorimus which I was told was not popular in western countries.
It was incredibly effective, in less than a week my bpms? (I still don’t know what this stands for!) Dropped from 14 times a day to four or
five and within another 3 or 4 days I was down to two! I then moved from drip to taclorimus tablets and salazopyrin which is an older, less-used
drug but my doctor said if you don’t have the side effects it’s actually more effective than Pentasa as 100% goes into your colon whereas
with Pentasa 40% is lost in the small intestine before it reaches the colon.
After 2 months in hospital and losing 18 kilos I finally left January this year. Anyways, 6 months on I’m still on Taclorimus but am slowly
switching to Imuran which is a more proven long-term immunosuppressant. My bpms are now down to 3-4 times a day.
Wow, this post is far too long-Sorry!
So, that's my story. Now I’d really like to hear from others about what drugs or treatments have most helped you and what you would most
recommend to others?