I'm so sorry that you're having a rough time. Uc is definately not an easy disease for sure. We all respond differently to different probiotics. I had a hard time trying to find the one that works for me, but after I found it, I was glad I stuck to experimenting. Even though I still flare while taking it, it makes my gut feel more "comfortable". I take Pro-Bio from Enzymedica. Then some natural products you can try is fish oil capsules or Bee Propolis (do not take if allergic to bees though). Have you altered your diet at all? Are you still on Canasa? If so, you might want to look into an enema instead such as Rowasa or even a steroid enema to help boost you in the right direction.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
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Posted 7/17/2008 7:36 PM (GMT -7)
I'll definitely try the fish oil or bee propolis. I figured i'd talk to my gi about vsl#3 on my next appointment. I was taken off the rowasa enema, because it started to cause chronic diarrhea and and I've tried the steroid enema many times, and unfortunately, like prednisone, it just isn't effective for me anymore. So, we've been trying the canasa. Thanks for the reply!
Diagnosed with ulcerative proctitis spring 2001 (Age 20). Diagnosed with pancolitis Oct. 2003. Now Left-sided colitis as of March 2006.
1,000mg Canasa nightly
Posted 7/21/2008 5:17 AM (GMT -7)
Another good probiotic is Primadophilus Reuteri. I've had much better results from it than any of the others I've tried. One or two capsules a day, and it's affordable.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC ForumPlease remember to consult your health care provider when making health-related decisions.
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