Posted 8/3/2008 12:39 AM (GMT -6)
Kiss520 said...
Well, I wish I could say that the seeds have helped me, but I don't think they're doing anything. I think the improvement I saw at the very beginning was a fluke. :-( I was so hoping this would help me, but I've given up hope after about 11 days. So, I've gone back to doing the only thing that ever showed me real improvement - cutting out sugars (fructose, sorbitol, mannitol, and lactose) and wheat bran fiber. This diet is from a book I read, and I the last time I did it I gave up on it, because I hated not having sugar. But now I've had such painful cramps and D that I'm willing to go back on it.

I guess everyone has to find their own "cure" if there is such a thing. I'm glad the seeds worked for Cfromutah and dudewhrsmybike. I still plan to eat the seeds for their nutritional value, but wish me luck with my no-sugar diet. ;-)

Suagrs and my IBD are like oil and water...Is this the diet you were referrinto?: http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm 
Posted 8/3/2008 8:40 AM (GMT -6)
Cfromutah - Haven't tried the spinach but was eating other foods high in beta carotene (probably not as much as you suggested). I will continue to do so but I'm also cutting out the sugars, because I know it works for me.

bbc - Its not the SCD that I'm doing. The book I read was called "The Self-Help Way to Treat Colitis and Other IBS Conditions," by DeLamar Gibbons. The last time I did it (a few weeks ago), it was during the second week that I started to see some real improvement. I stopped only because I hated not having sugar and decided to keep that diet in my "back pocket." I started having fruits and lactose and other sugars and immediately developed gas again and had lots of diarrhea, cramping, and blood. So, I'm back on it. I think this is my third or fourth day and the improvement is very noticeable already. If you decide to do it, just remember that even when you start feeling better, DON'T eat foods that you know are trigger foods (for me, that's fried food, alcohol or just plain overeating). Doing so will override your efforts and give you trouble.
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), Acidophilus 3X daily, Fish Oil and Multivitamin daily.
Diet/Exercise:  Sugar elimination.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 

Posted 8/3/2008 10:34 AM (GMT -6)
dudewhrsmybike said...
Only addition problem I face is the smelly farts. But I can live with that because I feel GREEEEAT!
tongue
 
Yeah, eating those seeds will cause you to have "killer" farts that linger! Not sure how you manage it...I've been eating Ravita crakers, which contain sesame seeds and boy, talk about smelly farts...wow!
 
Can you imagine if all UC sufferers worldwide, started to eat sunflower seeds? It could be the end of the world as we know it.

:-)

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

Post Edited (NuffinButtTrouble) : 8/4/2008 10:29:31 AM (GMT-6)

Posted 8/3/2008 11:45 AM (GMT -6)
Kiss520 said...
Cfromutah - Haven't tried the spinach but was eating other foods high in beta carotene (probably not as much as you suggested). I will continue to do so but I'm also cutting out the sugars, because I know it works for me.

bbc - Its not the SCD that I'm doing. The book I read was called "The Self-Help Way to Treat Colitis and Other IBS Conditions," by DeLamar Gibbons. The last time I did it (a few weeks ago), it was during the second week that I started to see some real improvement. I stopped only because I hated not having sugar and decided to keep that diet in my "back pocket." I started having fruits and lactose and other sugars and immediately developed gas again and had lots of diarrhea, cramping, and blood. So, I'm back on it. I think this is my third or fourth day and the improvement is very noticeable already. If you decide to do it, just remember that even when you start feeling better, DON'T eat foods that you know are trigger foods (for me, that's fried food, alcohol or just plain overeating). Doing so will override your efforts and give you trouble.

The SCD is also all about eliminating sugar; I have resigned myself to the fact that suger is my #1 enemy.  Glad to hear the sugar elimination is working for you!! :-)
Posted 8/3/2008 1:19 PM (GMT -6)
Thanks, bbc! If the SCD is difficult for you to follow (as I hear it is for many people due its strictness), you might want to look into the book I mentioned. You can still eat bread, just not wheat bran fiber. Cutting out all those sugars is difficult and annoying, but it still seems easier than the SCD. Once you identify sugar as a problem, isn't it amazing how many foods have sugar in them that you never would have suspected?! Its no wonder our whole country is fat.
Katie, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed), Acidophilus 3X daily, Fish Oil and Multivitamin daily.
Diet/Exercise:  Sugar elimination.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 

Posted 8/3/2008 1:31 PM (GMT -6)
People are overweight because they eat too much and don't exercise. Habits of eating fast and available foods that give the quickest return of satisfaction die hard. Sugar isn't really the culprit. Artificial sweeteners actually have played a far major part in the process of causing obesity. The free-flowing insulin causes hunger actually...there's also an addicton to the artificial sweeteners over and above sugar.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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