I'm sooo excited. I went to the appointment this morning with my new GI doctor and he's great. The appointment took 45 minutes because he was actually talking to me, which never seems to happen. Then, I gave him my old medical records and he took out the colonoscopy pathology reports and gave the rest back and said "These are all I need, I don't like to base my opinions off the opinions of previous doctors, I just want to know the facts and I'll build the rest of the case from here." Which was just SO great to hear.
Second great thing..... He has Crohn's disease
!!! My whole UC life, all I've wanted is to find a doctor who has IBD and REALLY understands. I almost jumped out of the chair in joy when he told me that. I mean, not that I'm happy he has to suffer with this too, but the fact that he's said he's taken all of the drugs, he KNOWS what it's like and really knows, and he actually spends time and is compassionate with his patients because he knows what it's like to be one.
Two other great things he said:
1) He doesn't like to prescribe prednisone unless it's ABSOLUTELY necessary, and said he would like to avoid it at all costs with me since I already have osteopenia and am steroid dependent. He also stated that since I'm usually on prednisone several times a year that he would typically consider Remicade BUT would like to try Lialda first just to see if it helps.
2) He actually mentioned surgery and basically said, "at least you know it's curable if you don't want to take these medications forever" and stated that, of course he's not saying to go yank the thing out right now but he always likes to inform his patients that it is an option that could end up happening and to keep it in their minds . I told him this made me really happy because I had been considering surgery as a future option, maybe in the next year or more, and to know he's supportive of it is great.
Now for the bad news.
It's been three years since my last colonscopy, so he said I definitely need one and he wants biopsies from the entire colon, and will also be doing an endoscopy due to my chest pains and history of gastritis and GERD. Great! I wanted this done so I'm happy about that.
NOT so happy about the fact that they're having me do the FLEET Phoso-soda prep!!!! And the schedule for it (since I am having an afternoon appointment) is 1 drink at 7pm, 1 drink at 7am so I'll be puking and pooping all night AND the following day. I could start the prep earlier at 3pm but then I'd have to take a drink at 3am! No thanks.
I'm really disappointed though because I haaaaate Fleet.... I might just buy some enemas just in case because I don't know if I can do it. This was the first prep I had and I remember vomiting and sitting in the bathroom crying for hours because it tasted so bad. Granted I was 15 and it was my first prep, but I doubt the taste has changed. Maybe I will call and say "Pleeease give me something else" but I hate being difficult. Ah well.
So overall it was great and I'm looking forward to the results of the scope, wish it was next week but I have to wait until July 30th. Ah the anticipation! Hah. But I'm so glad to finally have a doctor I believe I can trust and one who will understand me more than just what they've learned from their textbooks.