Remicade side effects

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

vb4girl
Regular Member


Date Joined Jul 2006
Total Posts : 90
   Posted 7/19/2008 8:25 PM (GMT -6)   
Has anyone experienced side effects after 2 yrs of successful infusions? Like reactions 5 weeks after an infusion? I recently have had some troubled breathing and my face is all puffy. I have had so many tests done that all come back normal- CT sinus scan, chest xray, echocardio exam, pulmonary function test. I just don't know what could be causing this. The pulmonologist says i have underlying asmtha but inhalers don't help it and i don't see how the puffy face could be a result from asmtha?? I had a cortisone shot in my knee 4 days before this all started happening but all doctors are telling me that it's not related to that bc that should stay in the knee....anyone???
Diagnosed w/ Ulcerative Colitis in 1999

Major Flare 6/2006- in hospital for a week where I received ALOT of prednisone and 1st Remicade Infusion

Current Meds-
Off Prednisone since Oct 2006.
6mp- 100 mg at night
Remicade Infusions every 8 weeks-last infustion 06/10/2008.


pattywatty
New Member


Date Joined Aug 2007
Total Posts : 12
   Posted 7/28/2008 4:10 PM (GMT -6)   
I am going tomorrow for my third remicade treatment.  It seems to be working.  Diganoised in 2005 and been hospitalized twice.
I am hoping this is the answer for me.  The only side effect I seem to have is lower back pain.  I went to my family doctor
and he says that 8% of the people who are on remicade have back pain.  I will ask my GI doctor tomorrow.
 
imuran 150 mil ( but hope to be taken off of it tomorrow)
colozal 750 mil  9 per day
lexapro 10mil
metformin 500 mil 4 per day
protonix 40 mil
vitimans
caltrate
remicade every 8 weeeks
 
 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 7/28/2008 5:07 PM (GMT -6)   
Yikes, I have to have that shot in my knee very soon; did the shot work? I emailed my GI and asked if it would cause any problems since I'm on Remi, and he said it shouldn't and to go ahead and get the shot.

Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


vb4girl
Regular Member


Date Joined Jul 2006
Total Posts : 90
   Posted 7/28/2008 6:25 PM (GMT -6)   
Hi Carol. Well the shot for my knee helped for about a week. I am actually have a knee scope done next week to see what's going on (that will be my 3rd knee surgery). But really, everyone is different w/ a cortisone shot.

I got the ok from my GI today regarding getting my remicade infusion one week post op.

When I was in the hospital in July 2005, I got ALOT of prednisone. I didn't think the cortisone shot would do anything as far as side effects. My knee doctor didnt think that the shot caused these side effects but of course he says "everyone reacts differently" and "i can't say for sure". Then my GI doctor said that he didn't think the cortisone would do this and said the Remicade wasn't the source either......

So you have been on Remicade for more than 5 years?
Diagnosed w/ Ulcerative Colitis in 1999

Major Flare 6/2006- in hospital for a week where I received ALOT of prednisone and 1st Remicade Infusion

Current Meds-
Off Prednisone since Oct 2006.
6mp- 100 mg at night
Remicade Infusions every 8 weeks-last infustion 06/10/2008.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 7/28/2008 6:42 PM (GMT -6)   
I've been on Remi for about 3 1/2 years. I'm doing well on it, and hate for something to cause a flare. I'm afraid the shot is not going to work either and I'll end up getting the surgery in the long run. It's so frustrating sometimes isn't it? I think it would be somewhat difficult to be a doc as everyone is so different it's hard to tell what could be causing the side effects. Good luck with the surgery, and let us know how you are doing.
Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


vb4girl
Regular Member


Date Joined Jul 2006
Total Posts : 90
   Posted 7/28/2008 6:49 PM (GMT -6)   
I will......what exactly is your knee problem? Remicade has worked really well for me- I haven't had colitis symptoms since July 2006. That's why I wish I knew what was causing this. I am actually going to have my next Remi 9 weeks after my last, instead of the normal 8 weeks.
Diagnosed w/ Ulcerative Colitis in 1999

Major Flare 6/2006- in hospital for a week where I received ALOT of prednisone and 1st Remicade Infusion

Current Meds-
Off Prednisone since Oct 2006.
6mp- 100 mg at night
Remicade Infusions every 8 weeks-last infustion 06/10/2008.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 7/29/2008 8:11 AM (GMT -6)   
I was in a car accident the beginning of June, and my knee was smashed pretty good. No broken kneecap, but the meniscus is torn, and since the other side of my knee has already had the meniscus removed, he is hesitant to do the surgery right away. He thought that maybe this might help the swelling. We shall see!
Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 7/29/2008 10:25 AM (GMT -6)   
I'm on my 4th infusion with no sideeffects
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade


teacupsunderfire
Regular Member


Date Joined Jul 2008
Total Posts : 46
   Posted 7/30/2008 10:57 AM (GMT -6)   
My GI wants me to go to the ER get IV steroids & start remicade.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:36 PM (GMT -6)
There are a total of 3,005,621 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
256 Guest(s), 6 Registered Member(s) are currently online.  Details
bobmars, Girlie, BBN!!, Sunflowergrl, InTheShop, (Seashell)