Hi...I can understand how you feel....living with a disease is so subjective, it would be impossible for one statement to cover all the bases. There is truth to the statement....it's hopeful for some, disrespect for others.
Many do have "normal" productive lives but our life situations would probably all differ...what's normal anyway? I know what I wouldn't have been able to deal with...I have adjusted my life and made decisions based on what I can handle and what I need. I have the opportunity to do so...If I were not married to whom I am or had different doctors..my life would probably have been extremely different for the negative.
You life is as it is with much responsibility, but that doesn't mean you don't have options or can't make some adjustments.
I see you're on 6000mg Salofalk daily...it could be causing some of your diarrhea...maybe you can discuss with your doc to lower the dosage by one pill a week to see if it can improve some of your symptoms.
I strongly suggest you request a rectal med to the mix...Sakofalk retention enemas or the suppositories will help with rectal inflammation and some of the urgencies.
When you're travelling, maybe you can consider to take some imodium to lessen the bms and anxiety of having to find a bathroom.
Add some fibre supplements to help bulk up the stool....can help to give you more formed bms, ease some of the bathroom times.
Some UCers get to the point where surgery is considered....quality of life seems to be the end result. always a consideration if you can't find relief from your symptoms.
Hang tough....seek options that can possibly work for your situation.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!