What does urgency indicate?

New Topic Post Reply Printable Version
30 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 7/20/2008 1:18 PM (GMT -6)   
I have been flaring since last November. With the help of medications and supplements I am geting much better now. I still have the urgency in the morning, though. And sometimes there is a little thick blood underlying the formed stools.

Does the urgency indicate that my rectum is still inflamed? I am using the enema every night and actually my GI doctor said I don't need it so often. She suggested me to use it on alternate nights. Should I listen to her?
And also, what does the thick blood (in a small amount) underneath the stools mean?
I would appreciate it if you can answer my questions. TIA.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/20/2008 3:05 PM (GMT -6)   
Yes, the urgency indicates rectal inflammation. Remember, UC starts in the rectum and spreads upward. When a flare subsides, it goes in the opposite direction, so the rectum is the last part to heal. If you want to follow your doctor's advice, just watch your symptoms. If they're worse, go back to every night. Better, continue tapering. Sometimes too much medication can also cause irritation.

Small amounts of blood usually come from hemorrhoids.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 7/20/2008 3:12 PM (GMT -6)   
Maybe the thick blood is trying to clot up.
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 7/20/2008 5:49 PM (GMT -6)   
Hi..welcome to the forum!

Yes, it would mean rectal inflammation....
You'll have urgency, but with different symptoms as when the whole colon or above the rectum inflamed. What other symptoms are you having and how often are you going?

If you're going less, the blood will probably be pooled blood as wit's end suggested. It could be a hemorrhoid as well...but I'd lean more towards the pooled blood because I've experienced it myself.

The rectum is the hardest to heal because of what it goes through expelling bms when the tissue is so fragile.

Are you on the 4g Salofalk or the 2g? 60 ml is the amount of liquid in the enema.

When you're using the enema....just put the tip in and push it in a teeny bit, start to squeeze out the med and then withdraw the tip just to the edge of the anus (but not out or it'll squirt ou..ugh)...that will get a concentration to the most stubborn area initially. Then as you continue squeezing, push the nozzle completely in and finish administering the rest of the med.

Lay on your back or sit up a bit rather than on your left side...

You could try every second night....but if your symptoms increase, just go back to nightly. Try the method I suggested for at least a week nightly and then go every second night.

It's OK to experiment because you'll have the option to increase. I tried fast tapers, slow tapers and realllllly slow tapers. It's not an all or nothing thing, so don't feel you'll compromise yourself by decreasing the Salofalk. As long as you have refills and get the OK from the doc to experiment...that'll lessen a lot of stress about the process. As well, it gives you the independence and some control to deal earlier and earlier with future flares. I can't say enough about the enemas as treatment and for maintenance.

Welcome again,
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 7/20/2008 10:44 PM (GMT -6)   
Thank you all for the replies.
Judy, I do have hemorrhoids. But my doctor doesn't seem to be bothered by them. I had a colonoscopy in April and she didn't mention anything about it.

Quincy, I'm now going 3-4 times a day, mostly in the morning. The stools are sometimes formed and sometimes loose. But I have the urgency every morning after my first glass of warm water before breakfast. It's funny that I don't need to go provided that I don't get out of bed and drink my glass of water.
I'm using the 4 gm Salofalk enema. It's the only medication I had when I was dx with UC in July 2006. I went into remission after 3 months and my doctor asked me to taper it off slowly to 1 enema in 5 days. Then I caught a cold in November 2007 and had a flare till the present. I have been wondering if the flare can be avoided if I kept on using the enema, say, 1 in 3 days instead of 1 in 5 days.
Anyway, I will try the method you suggested and see how it goes.
Thanks again.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/1/2008 1:09 PM (GMT -6)   
An update for my urgency and BM with blood.
11 days ago I started the method quincy suggested regarding applying the enema. I use the enema every night. The urgency in the morning has eased off a bit. I have 2-3 BMs with formed stools. But the last BM in the morning is often loose stool with a little thick blood underneath.
I'm seeing my G.I. the coming Tuesday. Last time when I mentioned my symptoms to her she asked me to increase the dose of Azathioprine to 100 mg. (I weigh 100 lbs and that's proportional to my weight.) But I refused to do so. It makes my I.N.R. drop so that I need more Warfarin (an anti-coagulant for my DVT) to prevent blood clotting.
Having said that, she believes that the bleeding is related to Warfarin, on top of the fact that my colon/rectum is still inflammed.
I'm quite sure she will ask me to increase the dose of Azathioprine on Tuesday again. What else can I do? Can I just keep the present medication and wait for the rectum to heal?
By the way, I may be able to get off the Warfarin pretty soon. I was told initially that I would need it for 6 months till mid August. I will see another specialist next week to confirm.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 8/1/2008 1:24 PM (GMT -6)   
But how come urgency is also part of IBS yet IBSers (who dont have UC) by definition have no inflammation.

That must surely imply that while urgency can be casued by inflammation, it can also be caused by other factors maybe specific to IBS

D
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/7/2008 1:50 PM (GMT -6)   
So I went to see my G.I. doctor day before yesterday. I told her about the mild rectal bleeding and urgency, which were my last symptoms of a flare. She asked me to try Salofalk suppository every night for 2 weeks and then on alternative nights after that.
I used it for the first time last night and guess what? I didn't have any urgency this morning and had just ONE BM till now (12:50 noon)! I'm so happy about it. yeah
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/7/2008 5:11 PM (GMT -6)   
Make sure you keep using them nightly and then taper...continue tapering to every 3 nights, every 4 or stick to twice a week for a while to help keep you in a remission and prevent more intense inflammation.

Happy to hear you have improved.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/7/2008 8:48 PM (GMT -6)   
Thank you very much, quincy. In fact, your suggestion to me earlier regarding administrating the enema has helped me a lot. And now the suppository is just the final touch.
My G.I. doctor wrote me a script for 58 suppository capsules and no refills. But I still have a lot of enema. I think I will start using the enema again, say, 1 in 3 days, after I have finished the capsules, as a maintenance medicine. I got my present flare after I tapered the enema to 1 in 5 days last October and I don't want it to happen again.
What do you think?
By the way, my doctor asked me to go see her again in 3 months. She anticipated me to get better and better. So happy about it.
I wish everybody here gets well soon.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/8/2008 12:27 AM (GMT -6)   
It's a plan. Did you increase the Aza?

The doc wanted you to drop the nightly enemas to just the supps nightly? That's quite a drop med-wise.

I think you should at least do the enemas twice this week then the next week once and see how you fare with the drop in med.

How did you fare yesterday?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Y2K Bug
Regular Member


Date Joined Jul 2008
Total Posts : 114
   Posted 8/8/2008 3:02 AM (GMT -6)   
i used salofalk enemas but found they didn't put me into remission, but i did the shove and shoot method. do you think its worth trying them again using quincy's method? i was on them a long time ...

if you do apply some of the medication just inside the anus does this give you some urgency?
Peter
 
49yo single dad 
dx 1985
mesalazine 1.5g, prednisolone 15mg
tried infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/8/2008 12:52 PM (GMT -6)   
quincy, as I had posted yesterday, I had just 1 BM yesterday morning. Then at 5pm I had another BM with a little brown soft stool after I have eaten an orange. There was no urgency. Before I went to bed I had another BM, very much like the one in the afternoon. I used the Salofalk suppository after that.
My doctor didn't mention the enema. I suppose she wanted me on the suppository only from now on until I see new problems. You mean I should use the enema on at least 2 nights a week and then the suppository on the other 5 nights?
My doctor also wanted me to increase my Aza to 100 mg but I've decided secretly not to. I started Aza on June 22 after completely off Prednisone and I'm not sure if it has kicked in or not. I wonder if I'm getting better because of taking probiotic and Metamucil instead.

peter, Salofalk enema helped me a great deal when I was first diagnosed with UC 2 years ago. It was the one and only medication prescribed to me. I was almost symptom-free after using it nightly for 2 months. I was in remission from Sep 2006 to Oct 2007.
And yes, it gives me some urgency sometimes. I take quincy's suggestion to lie on my back instead of on my left after administrating and it helps. yeah
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/8/2008 2:59 PM (GMT -6)   
I seem to also have urgency issues, but I think mine are psychological. I have no symptoms of inflammation, and haven't for over 7 months, but when I need to go in the morning, I NEED to go! Just that morning one, though. After that, if I even go anymore, I feel anxious if the urge comes, but after a year of not being to hold it, I guess that is normal. But even when I get in a car, I get all gassy and anxious and sometimes feel like I need to go, though I probably don't.

Sorry, got on that tangent. What I really wanted to say was that I would recommend telling your doc that you aren't taking 100 mg. aza. Though he is doing what he thinks is best for you, ultimately it is up to you, and it is better that he knows what you are on (though he might not be happy.) Don't worry about pissing off the doc. He should respect your decision.

Though, admittedly, if you're taking 50, it likely isn't doing anything, so I'd probably either take 100 or take none.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/8/2008 9:20 PM (GMT -6)   
Sorry to know that you may also have the urgency issue. It can be really annoying.
I want to wait for a little while before deciding on whether or not to increase the Aza. I agree with you that 50 mg is not likely to do anything for me. That's why I think I have improved not because of it. I'm not going to tell my doctor about it yet. Not until I am symptom-free. But if I get worse before seeing her again in 3 months, I will increase the Aza to 100 mg. tongue
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/9/2008 12:23 AM (GMT -6)   
Hi there...hey, all you can do is try the supps nightly or daily whatever works...you'll notice soon enough if you need to add the enemas, but maybe you don't need that much 5ASA and the supps are perfect for what inflammation you have now.   You're still on the Salofalk oral so that should help above and probably into a bit of the sigmoid. 

I'm happy to hear today was consistently positive for you.
 
I don't know what the normal dosage for Aza is....would the 50mg really be a nothing dosage and 100 the norm?

Keep us posted.
q


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/9/2008 1:59 PM (GMT -6)   
As far as I know, the dosage of Aza is 1.5 - 2.5mg per kg of body weight. I weigh 100 lbs. (45 kg).
So 1.5mg x 45 = 67.5mg and 2.5mg x 45 = 112.5 mg. I'm taking 50mg, which is less than the minimum dosage.

My doctor asked me to start with 50mg and then increase to 75mg and ultimately 100mg. But the Aza makes my INR (International Normalized Ratio, a blood clotting index) drop, meaning that I'd have a higher risk of getting blood clots.
I'm still taking Warfarin for my DVT (left leg) and it seems that there is no more blood clots. Will have another ultra-sound this Wednesday to confirm. I really hope that my bleeding will be eliminated after I'm off Warfarin completely. It's an anti-coagulant and thus a blood thinner.
And when I'm symptom-free I will ask my doctor if I can drop the Aza completely as well. The taking of it makes me nervous.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/20/2008 8:17 PM (GMT -6)   
So I have been using the Salofalk suppository for 2 weeks. And I'm upset because I was too happy too early.
I noticed improvement on the first 2 days and then the bleeding returned.
So I added the enema at night and used 1 suppository in the morning. Still no improvement.
In the past couple of days I notice that I can't see if my stools are formed or not because the toilet bowl water is cloudy. I can only feel that at least some of my stools are formed.
Is it the loose stool that makes the toilet bowl water cloudy?
I have no diarrhea. I go 3-5 times a day, often with a little thick blood.

I talked to my doctor over the phone this afternoon. She asked me to continue with 1 suppository nightly. She said it's okay with this dosage provided I don't get worse. And if I do, I can always ask to see her.
But the 'cloudiness' make me feel uncomfortable. Any advice, please?
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/21/2008 1:06 AM (GMT -6)   
Hi...OK....explain clearly because I'm confused (easy lately). You're on suppositories nightly but not enemas?

The Salofalk tablets...you're only taking 3 a day? 1500mg is a low dosage, maybe that's part of the loose bms...meaning the inflammation might be going a bit higher? Loose bms going through an inflamed rectum are better than formed ones...don't worry about that part. Anything wonky on the tissue? meaning do you see blood or just stool?

Did you up the Aza?

I'm puzzled why the doc doesn't want you on the Salofalk enemas ... you should be on them nightly at least to help get this under control. Is it because of the other meds you're on?

If that's the case, ask her for a script for the 2g enemas...more liquid so that it can go higher, but it's a lower dosage of 5ASA.

If the 5ASA isn't the problem, she should consider to up the oral Salfoalk to 2000mg then to 2500mg if that's not enough.

My take on it anyway.....some suggestions...

But....do not let it go on too long before calling the doc.
 
Oh, last question....were you on the nightly enemas (as per your first post) since November last year??

Keep us posted.
quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/21/2008 1:47 PM (GMT -6)   
Hi quincy! Thank you for the reply.
I admire your insight. You said I would know soon enough if I need to add the enemas and it's so true. I had to add the enemas 3 days after I've started the suppository.
I had been using the enema since last Novemeber until last February when I was put on 35 mg Prednisone. I was flaring so badly and having so many D that I couldn't tolerate the enema. My doctor said I didn't need the enema while I was on Prednisone. And I was indeed feeling great when I was on Prednisone. I even had a 6-day vacation with my family to celebrate my daughter's graduation from university.
While I tapered down to 20 mg Prednisone I started my enemas again. My doctor said I only needed 1 in 2 or 3 days. I continued to feel good until I had completely tapered off Prednisone when I saw blood again.

Before I was put on Prednisone I took as much as 4 gm of Salofalk tablets a day. I had no problem with 5ASA but it didn't help much. I still had more than 10 D everyday until I was sent to ER for I.V. So after I've started Aza my doctor said I could take just 1500 mg a day. I'm stubborn and I haven't upped my Aza, still taking 50 mg a day. I may seriously consider upping it to 100 mg as suggested by my doctor.

In the past 2 weeks I had used enemas on 3-4 nights and suppository 1-2 times a day. I used an enema last night and I had 4 BMs this morning. The toilet bowl water is clear and I can see there are formed stools and thick blood. I have cramps during the BMs but it's not too bad.
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/21/2008 11:21 PM (GMT -6)   
Hi...there's a fine line between too much medication and not enough.

Your health situation has you having to juggle some meds, and you've been through serious UC needing hosptal intervention.
If the Aza is able to help at a 100mg dosage, maybe you should consider it. It might give you the break you need to help get the flare more under control. Maybe then, the 5ASA will work better and you'll need less.

Regarding other meds and 5ASA...it may possibly be that prednisone and other meds can hinder the effectiveness of 5ASA or eventually cause it to be intolerable. I'm just suspecting here... I'll have to do some searching and see if it's actually true or if there are any contradictions.

The other options would be for you to use maybe Entocort, steroid enemas and suppositories....at least here are other routes to go if 5ASA is no longer an option. Oh, there will be a steroid topical oral med that will be released more into the colon rather than in the first part of the ileum as is the Entocort....
But, they're steroids....low dosages are always a possibiltiy tho.

Hope you're able to have a feeling better weekend...

As always, let us know how you're doing. Good to hear the toilet bowel is clearer..lol!

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/22/2008 12:00 AM (GMT -6)   
In early February I was having so many Ds that on 2 or 3 nights I had to go right after I used the enema. I just couldn't keep the enema in me. I told the GI specialist in the ER (who put me on Prednisone) about this and he said I didn't need the enema when I was on Prednisone.
Anyway, I started using the enema again when I tapered to 20 mg Prednisone. When I saw blood again I used it every night until my doctor asked me to switch to suppository.
Well, I have just taken 75 mg Aza before I read your post. Perhaps I should try to be a good patient.

6 BMs today and every time the toilet bowl water is clear. yeah
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 8/22/2008 12:04 AM (GMT -6)   
good girl...lol!

Remember, that some foods will cause looser stool. But, you'll be able to tell the difference if your food intake hasn't changed.

Keep us posted as to how the next few days go for you.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/22/2008 12:07 AM (GMT -6)   
Or you could just tell your doc to give you cortifoam which is a steroid based rectal med and usually very effective for most, with no side effects like taking oral pred becuase not near the amount gets into the blood stream when using it rectally...honestly, your doc said you don't need rectal meds while on pred shocked .
 
BTW, salofalk was a complete waste of money for me as well, from my experiances, if I'm gonna shove something up my already painful "area" then it better be worth shoving it up there and salofalk suppositories were definitely not worth it...cortifoam sure has been though.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/22/2008 12:08 AM (GMT -6)   
Sure! Thank you.
Good night!
UC since July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare till the present.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema/suppository, Salofalk tablets 500mg x 3/day, Azathioprine 50 mg. Warfarin for my Deep Vein Thrombosis which resulted from diarrheas and dehydration in Feb 2008.
Supplements: Probiotics, Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsule (Metamucil)

New Topic Post Reply Printable Version
30 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Thursday, June 21, 2018 4:09 PM (GMT -6)
There are a total of 2,974,242 posts in 326,161 threads.
View Active Threads


Who's Online
This forum has 161234 registered members. Please welcome our newest member, run_sunshine.
367 Guest(s), 12 Registered Member(s) are currently online.  Details
LifeCointosses, Buxx99, JLReis, run_sunshine, 81GyGuy, torontolyme, sandyfeet, Jerry L., sebreg, The Dude Abides, Paxton, U.C.Me?