Hi Paul, first of all, have a terrrific vacation. I am so jealous as I have always wanted to go on an Alaskan cruise.
While we are by no means experts when it comes to surgery (Bratcat just had step 1 on July 3), I can say she is doing well and adjusting well. She also had a full incision surgery (both surgeons we consulted with prefer to do it that way). She has always been less upset about that than me (go figure). Her staples were removed on Friday and that helps alot. She is now only taking 2.5 mg of prednisone daily and it is such a big change from before surgery that I have to remind her (something I never had to do before).
We were able to get her surgery scheduled within 3 weeks of seeing the surgeon. Since she was in remission at the time, I did wonder if it was the right thing to do. But they do say it is better to be healthy for surgery than not. For most of the 3 weeks we discussed surgery and the summer recuperating in a very surreal way (almost as if we were talking about someone else). It wasn't until the Monday before surgery that the nerves set in. Even the day before we were wondering how could we do this to our child. But we know she wasn't responding to the drugs well enough and it was only a matter of time before she started flaring again.
Even though it is hard, try not to think about the surgery while on vacation. Take lots of pictures!!
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare! 7/3/08-Step 1 j-pouch surgery