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New Member

Date Joined Jul 2008
Total Posts : 13
   Posted 7/21/2008 1:07 PM (GMT -7)   

Post Edited (UC_Guy) : 6/14/2013 1:40:52 AM (GMT-6)

Regular Member

Date Joined Jan 2006
Total Posts : 466
   Posted 7/21/2008 1:46 PM (GMT -7)   
Everyone suffers coming off pred in their own way.  Despite being on it myself for so many years, I am still amazed at the effects it has on people.
In answer to your question, I have had ear problems (too sensitive), headaches and dizzy spells during my taper.  My worst one though is my skin has become dry and itchy.
Abatacept Trial since Feb 2008 (Maintenance Period)
Back on Pred - 3mg - Steroid Dependent :-(
Azathioprine 150mg
Colazide x3
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic

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