Well, I'm new to all of this...I'm not exactly diagnosed yet, but I know I have UC. My identical twin sister got diagnosed 5 years ago when she was 16, and now about
a month ago I've started having blood and mucus every time i go to the bathroom...I'm totally pissed off, I didn't think it would happen to me, but the doctor said i had a high percentage of getting UC and i probably have it. I go in about
2 weeks to get a scope done, which i'm terrified about
! Even though my twin has UC, you think I would feel like i have a support system, but I really feel alone. She's been in remission for a couple years now, has been on meds forever, and is doing much better. I think she has forgotten about
how much pain it caused her. She's telling me I'm just freeking out and it's all in my head. My symptoms have recently gotten worse. I'm always in pain, I'm nauseous all the time, and i am constantly bloated. It seems like no one understands how painful this is. I'm on the toliet 8+ times a day and can't remember a time when it was ever normal. I'm constantly being told that I'm overreacting and that I just need to relax. I don't think my sister ever got sick to her stomach with UC, so I'm sure she will never understand the constant pain I'm in. I feel as if I cant eat anything because it just goes right through me. I've been afraid to go out recently for fear of that pain that can strike at any moment. I haven't really told any of my friends and I honestly don't think they will understand. In high school when my sister was diagnosed, everyone gave her a hard time. She was also put on prednisone and gained about
40 pounds of water weight, something I really hope I dont have to do, as vain as that sounds. I've always been an active person, constantly working out, I'm a college cheerleader, ran cross country and track and cheered in high school, and I now coach a varsity high school cheerleading team. Now when I go to the gym, I get terrible cramps and pain. I don't really know if it's helping me or hurting me. Hopefully this scope goes well and I can some help immediately. I just want to live a normal life and have the people who are close to me understand how embarrassing, painful, and scary this is for me. If anyone can give me some insight on all this and some advice for this constant pain and bloating, let me know! Also, I'm only 21 and I feel like I'm the only young person out there who has this, even though I've heard statistically UC effects most people before the age of 25...so to any young people out there going through this let me know, i feel totally alone and out of place......Thanks!!!!!!!!!!!!!!!!!!!!!!!!!
Post Edited (ImAud) : 7/22/2008 8:00:44 AM (GMT-6)