Good News - Infectious Disease Doc cleared me for Remicade after August 8th!

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 7/22/2008 7:20 AM (GMT -7)   
That would be three months after my last MRSA/Charkot Disease surgery.  He said my transplant is clear - and since I am flaring, he would start me back up next month.  There is little data on this type of thing - they were going to wait until 4 months, but after looking at my transplant and the speed that it is healing - he feels more comfortable letting my GI put me back on Remi.
 
I feel this is good news and lets me look forward to relieving my flare.
 
Thanks for letting me share!
 
love
bob  

Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 7/22/2008 7:27 AM (GMT -7)   
That's awesome news Bob. Hopefully this will get you feeling better and more onto the road to recovery.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
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Beth75
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Date Joined Jul 2007
Total Posts : 2148
   Posted 7/22/2008 9:13 AM (GMT -7)   
great news!!!!
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 30mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Old Hat
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Date Joined Feb 2007
Total Posts : 5151
   Posted 7/22/2008 9:42 AM (GMT -7)   
Wow! That will hopefully get your flare back under control. In the meantime, are you taking vitamins? Assuming you have to stay indoors, your vit D level is likely low, & that can contribute to runs, plus inadequate absorption of calcium into bones. When they draw bloods, you can ask to have vit D25 test if they're not doing it already. Your blood level should measure 30 or higher for acceptable absorption. That can relieve joint pain, etc. per my gastro, who subspecializes in IBD treatment. Great that you can update us now via laptop! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.]) 

jujub
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Date Joined Mar 2003
Total Posts : 10407
   Posted 7/22/2008 10:26 AM (GMT -7)   
That's great news, Bob! I hope it gets you back into remission quickly.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


potty girl
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Date Joined Dec 2006
Total Posts : 835
   Posted 7/22/2008 11:03 AM (GMT -7)   
Good luck, hope it help you out in a hurry.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/22/2008 11:04 AM (GMT -7)   
Awesome!!! I hope this really gives you the boost you need to fully recover. Keep us posted when you can! :)

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 7/22/2008 11:24 AM (GMT -7)   
Bob, that's WONDERFUL yeah yeah yeah   I hope you will see some improvement quickly.......Good Luck
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 7/22/2008 11:24 AM (GMT -7)   
That's great news!!! Keep us posted!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Zegerid (not sure if it is working)

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dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 7/22/2008 12:09 PM (GMT -7)   
Wonderful! I hope it works quickly for you :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Last Prednisone dose:  7/15/08
 
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jano437
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Date Joined Jul 2005
Total Posts : 1613
   Posted 7/22/2008 6:31 PM (GMT -7)   
Great news. Hope you get that flare in control soon
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 7/22/2008 6:51 PM (GMT -7)   
That's wonderful news. I hope things get under control quickly.

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 7/22/2008 6:57 PM (GMT -7)   
Yahoooooooo! :-) Great news, Bob.
Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 7/22/2008 10:10 PM (GMT -7)   
hey, bob! good to see you back. i was just wondering about you the other day......matter of fact you're why i stopped in tonight to just lurk and see if you'd bobbed (sorry bout that) back to the surface. back when you were describing what you were going to endure, it sounded pretty dire. glad to see you back up and fighting. that mrsa thing scares the bejeepers outta me. i've never been in a hospital before and now that i'm in my 60's i know that record prolly won't last long.....with the hospital stay possibly being worse than the malady that sent you. glad to see they have that under control. we're all pulling for you.

hi carol! glad to hear you are doing well too. sorry i haven't been around much.

vv

bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 7/23/2008 8:23 AM (GMT -7)   
That's great, Bob! Hopefully you'll be feeling better soon!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda, 1 Forvia, 9 Colazal/day
*exploring the option of surgery
 

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