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P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/22/2008 9:13 PM (GMT -6)   
My GI doctor is doing all kinds of blood work, however, he mentioned putting me on stronger meds because I cant keep my UC under control. He's doing a colonoscopy next month to check for spreading. I cant remember the name of the meds he wants to put me on, but I do know the way he described it scares me badly. He said I would have to get my blood drawn every month for the first 3 months and then quartely after that cause these meds can mess w/my white cell count. Does this sound fimiliar to anyone? I really dont want to take these meds. Is taking more colozal/canasa an option?


Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 7/22/2008 9:27 PM (GMT -6)   
I'm guessing your doctor is referring to immuno-suppressors like Imuran (azatioprine) or 6mp. Both of those meds. require frequent blood testing. My UC kids each take one of the drugs without bad side-effects (at least that we know of...) and they seem to be helping as both kids are in remission and feeling well. Both drugs have been around for quite sometime. But yes, it is scary to consider such drugs.
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/22/2008 9:41 PM (GMT -6)   
Colazal if taken in a higher quantity can actually cause more trouble then it's worth such as increasing D and/or bleeding. And if in the event your Uc has spread, Canasa would be like trying to hit a bee with a feather. It just won't reach the designated area. Why are you on Canasa instead of a liquid enema? Canasa only treats the rectum while the enemas can treat higher up. Have you ever thought about using the steroid enemas?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
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P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/23/2008 10:41 AM (GMT -6)   
I have never been given the option of a liquid enema. When I was first diagnosed, the UC was very low in the rectum so I was only on Canasa. Over the yrs the disease has progressed up the colon and they put me on the colozal and the casana during flares. I'm interested to see what my colonoscopy next month shows. I have pain under my ribs everyday and I think it has spread up to the bend in my colon by this area. I called yesterday for the results of my bloodwork. They were testing for Celiac and a bunch of other stuff. Haven't heard back yet sad
Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


Bum Deal
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 7/23/2008 11:56 AM (GMT -6)   

Hi P-fit,

It's most likely Azathioprine or 6MP your doc's talking about putting you on, as Keylime said. Both of these drugs do sound a bit scary when you check the side effects - but then again, all drugs have scary side effects if you check.

I was put onto Azathioprine as I was finding it impossible to come off steroids - it worked ok for a while and then I became allergic to it. My doc switched me to 6MP, which is just a variant of the Azathioprine, and has been slowly increasing the dose, monitoring my bloods, and it's working really well. I'm down to a very low dose of steroids which would usually have me flaring and I'm still doing ok, and i've had no fatigue or any other side effects.

6MP is supposed to reduce your white cell count, to bring the immune system under control so that the inflammation and ulceration in your colon goes away. The way my GI doc explained it to me was that my immune system was over-acting and needed to be brought into line, which is what the 6MP does.

Seriously consider giving it a try - for me it's been the only stuff so far that's worked well enough for me to start living a normal life again.

Feel better soon,


DW

Male 30 Years Old.

Diagnosed Pancolitis June 2007

Currently 10mg Prednisolone, 9 tablets Asacol, 50mg Imuran (started Dec 07), 100mg Mercaptopurine (following allergic reaction to Imuran)


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/23/2008 1:30 PM (GMT -6)   
Thanks for the information. That explaination puts me more at ease.
Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/23/2008 2:37 PM (GMT -6)   
I just got a call from my Dr-no Celiac disease!! He does want me on the 6mp and that initial blood test hasn't come back yet.
Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
BUTALBITAL/ACETAMINOPHEN/CAFFEINE-Migraines
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 7/23/2008 5:27 PM (GMT -6)   
I'm on my "third run" with Azathioprine,and it's never been a problem for me,in fact it's a blessing,as it works really well in controlling my UC.As long as you stay up to date with the bloods,there's no cause for alarm,as any probs will be caught early.Hope it works as well for you as it does for me.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/23/2008 6:25 PM (GMT -6)   
Well, there is an increased risk of lymphoma. The numbers are small, but the risk is there.
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