We were so darn close! Finally, thru a VERY slow taper, got off the Pred. Didn't cheat, accepted to slow consequences, and within 1 week, the bad stuff is coming back. Cramps, formed stools but increased frequency (7 small eliminations today) and the first trace of blood. We've survived a few weeks of no appetite, cranky/sad moods, and fear of an upper GI blockage.
Now, my daughter would rather have her hair lit on fire than go back on the pred., doc appt not till Aug 14th. Need your thoughts: Do we ride this out and her body adjusts by itself, or am I kidding myself, and this is really the start of a flare that will need attention? I hate to let it get ahead of us. She is on 6 Asacols and has left sided UC. Also 60 mg of 6MP . Rectal meds created quite a stir the last 2 times she tried---she can keep them in, but the BM's increased to 20 or so, so we are too afraid of them for now.
We were close to trying to go on an antibiotic for the acne on her poor face, but we can't risk it now that the threat of a flare is knocking at our door.
Thoughts? Have any of you come out of a small flare like this without going back on the dreaded Pred?
Thanks in advance.
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Asacol, Prednizone 50mg, major flare, now off!, Hosp. @U of C, Comers twice this yr. Low residue diet still
began 6MP, ,horrible acne, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.