I think this is ok??

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~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 7/22/2008 9:46 PM (GMT -6)   
I have been reading the rules and its stated..."
  • Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT to solicit, advertise, promote, fundraise, etc."   
  • so,  with that being said,  I don't think I have a "vested interest" in this website (altho not sure exactly what that means),   and I know its purpose is not to solicit,  advertise or fundraise. 

     

    So I wanted to share an awesome social networking site that has great people and resources for those with Crohns and Ulcerative colitis....  its at http://www.wearecrohns.org/    


                                              ~Christie
    41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Currently in complete remission thanks to Remicade!!)
                                             Medications
    Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


    bellski
    Regular Member


    Date Joined Apr 2008
    Total Posts : 499
       Posted 7/23/2008 5:31 AM (GMT -6)   
    Thanks, I looked at it for a sec, and might check it out when I have more time. (O:
    Lori (Bellski)-age 43 from Illinois
    Diagnosed February 2008 with Ulcerative Proctitis,
    Currently: mild symptoms / flare ?
    Medications:  Asacol 400mg X 6, Canasa X 2 
    Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
    High fiber diet
    "I thank God that  I found this website!"
     


    ~ChristieAnn67~
    Regular Member


    Date Joined Dec 2007
    Total Posts : 151
       Posted 7/24/2008 4:59 AM (GMT -6)   
    yeah..great site for making more UC friends and resources! 
                                              ~Christie
    41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
                                             Medications
    Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.
    http://www.wearecrohns.org/christie67


    ~ChristieAnn67~
    Regular Member


    Date Joined Dec 2007
    Total Posts : 151
       Posted 7/26/2008 6:56 PM (GMT -6)   
    Its almost like a myspace for IBD sufferers. 
                                              ~Christie
    41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
                                             Medications
    Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.
    http://www.wearecrohns.org/christie67


    UCqueen
    New Member


    Date Joined Aug 2008
    Total Posts : 9
       Posted 8/14/2008 11:18 PM (GMT -6)   
    Has anyone else visited this site?

    LondonRed
    Veteran Member


    Date Joined Oct 2007
    Total Posts : 1190
       Posted 8/15/2008 5:15 AM (GMT -6)   
    I just joined and it is similar to this site except maybe more of a "community" of people rather than just a discussion board on the pains of IBD.

    Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
    Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days


    jujub
    Forum Moderator


    Date Joined Mar 2003
    Total Posts : 10407
       Posted 8/15/2008 7:12 AM (GMT -6)   
    It's a social networking site, whereas this is a peer support site. Different focuses.
    Judy
     
    Moderate to severe left-sided UC (21 cm) diagnosed 2001.
    Avascular necrosis in both shoulders is my "forever" gift from Entocort.
    Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
     
    Co-Moderator UC Forum
    Please remember to consult your health care provider when making health-related decisions.


    ~ChristieAnn67~
    Regular Member


    Date Joined Dec 2007
    Total Posts : 151
       Posted 8/16/2008 2:00 AM (GMT -6)   
    yeah..its different focus....I get more useful info/resources here, but a bit more sympathetic/personable stories there Iguess....I still feel the need to visit both areas for different things.     altho,  I must say there are more "RULEs" here, that you have to be cautious of...but if you can be on top of that,  I have enjoyed it here for a long time...
                                              ~Christie
    41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) But,  a flare July 08,  currently controlled with prednisone and last remicade on July 31st...Hope it stays that way!!!
                                             Medications
    Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 7/31/08.  6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily. (currently on pred taper...down to 5mg twice a day)


    Red_34
    Forum Moderator


    Date Joined Apr 2004
    Total Posts : 23551
       Posted 8/16/2008 3:56 AM (GMT -6)   
    And we have enjoyed having you here Christie! :) Yes we have a lot of rules but unfortunately due to some past bad experiences with unruly members, these rules had to be created and enforced. You know the saying - one bad apple.........
     @--->--SHERRY--<---@
    Moderator for Allergies/Asthma and Co-moderator for UC
    ~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
    To help Healingwell - click here: DONATE
     
     
     
     

     
     

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