What is your pain like?

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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/22/2008 11:09 PM (GMT -6)   
Can you guys describe what your pain is like in your abdomen and how often etc?
 
Also, do you guys have joint pain associated with your colitis and can you describe it?
 
I should finally have some more answers about my fleeting joint pains and side ab pain on 8-8 when I get my colonoscopy........In the meantime I am going to continue to do research on what could be happening with me should my scope come back okay. So far no answers from the drs..


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 

Post Edited (king1234) : 7/24/2008 12:58:08 AM (GMT-6)


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/23/2008 6:28 AM (GMT -6)   
I do not have a lot of pain in the abdomen usually unless I have to go to the bathroom, I have usual "I've got to go right now pain". Does that make sense? lso, I sometimes get sharp pain in rectum area, occasionally lower somach pain, but not bad. Body Aches! Come and go. I'm 43 and sometimes feel older. I feel like my body was hit by a truck sometimes. Bottom of feet hurt a lot, bones just ache. Again, not always and I have no idea if body aches are related to my Ulcerative Proctitis. I hope you get answers soon and hope they are good ones! Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/23/2008 7:10 AM (GMT -6)   
Right now I don't have any pain but when I am flaring I have a constant sharp, raw, pinchy pain on my upper to middle left side of my intestines. When I feel the urge to go, I have cramping in my lower abdomen. As for the joint pains, yes I get those mostly when I am flaring though. My knees get the worse of it. My lower back tends to hurt more too when I am flaring.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Hans C
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 7/23/2008 7:15 AM (GMT -6)   
Well I pass alot of blood but never much seem to suffer from pains.

The odd feeling of urgency, the odd feeling of rawness in my lower intestine and that's about it.
I would describe my most common sensation as an unsettled feeling like mild fizzing in my bowels (only in peak bad bout).

A year or so prior to my diagnosis I experienced a few times very sharp and intense shooting pains in my bowels.
age 26  ------------- diagnosed 2004 (probable left sided)

Multi-vitamin                                       Lactobacillus acidophillus sachets
Aloe vera - Omega3 fish oil                    Asacol (8x400mg)                     
Iron, folic acid and b12 supplement__________________________________________________ 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/23/2008 10:23 AM (GMT -6)   
The last couple of days I've been having throbbing pains with a few bouts of sharp pains in the middle of throbbing pains all over my lower abdomen. Sometimes it worse on the left-side. They're almost unbearable.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda, 1 Forvia, 9 Colazal/day
*exploring the option of surgery
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/23/2008 10:44 AM (GMT -6)   
I have cramping and the urge to go NOW, left side pain (under my breast) and joint pain with fatigue (especially when anemic from bleeding). My knees and finger will swell and my eyes hurt at times. My GI Dr says this is due to a flare and maybe under treating my UC.

Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 7/23/2008 12:13 PM (GMT -6)   
No pain right now. Last night I was stupid and ate carrots so I had horrible pains in my lower abdomen like I was being stabbed. Lately when I eat something that doesn't agree with me or my colon is in a bad mood it hurts really low, like it's my bladder. My joints are better now that my colon has improved, but I always have joint pain during a flare. Urgency is still an issue for me but it's something I've learned to live with.
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/23/2008 1:01 PM (GMT -6)   

Thanks all. This does sound like what could be going on with me. My first pain was about 5 yrs ago, I was driving home and got a crippling pain on my left side about 2 inches left of my belly button. I could not move. Went to ER and all organs checked out okay. Every now and then over the years I would get that same pain there either before,during or after a BM. The pain could last 2 to 20 min. Last yr I got a dull pain there that last a week, thought it was my overies but they were fine. I blew the pain off. Then this year right after a VERY stressful event the dull pain came back and has stuck with me, I have it most days. There was one day a few wks back it hit SO hard I thought I was about to die, went to ER all organs checked out again. about 2 wks ago I had a BM everytime after I ate, they were loose. I was going about 8 times per day. NORMALLY, I am the opposite, more consitpated. Now my BM seems normal, but dull pain still there. With all this, dr thinks Colitis though I wont know till my scope

 

I have for the past 5 wks migratory and fleeting joint pain, it can hit for 10 seconds in one part of my body or last an hour in another. I have been fatigued and am getting bumps and indents all over my nails. I did read colitis and joint pain can be associated hence my posts. Just trying to calm myself down and connect the two issues.....

 

Does your joint pain sound like mine? How long do flares last? Does stress cause a flare?

Any more ideas, keep them coming. Thanks so much!



----------------------------------------------------------------------
 
GERD dx March 2007
Currently no diagnosis from migratory joint/bone pain, feet buzzing, fatigue and dizzy spells
Migraines with Aura


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 7/23/2008 1:22 PM (GMT -6)   

Your joint pain sounds similar to UC pain, but your Dr would have to tell you for sure. Flare time can vary from what I've read and experienced. My flares used to be a week or 2 but my latest one, which I'm in now, has lasted for many many weeks. They say stress doesn't cause it, but it doesn't help either. Stress weakens our already compromised immune system, so in my mind it can be at least a contributor to symptoms.

Good Luck to you and hang in there. You can make it through this.


Dee-38yrs old 
Diagnosed with UC in 2004-PTSD/Panic Disorder/Depression in 2007 & Fibromyalgia 2008
750mg colozal 3 pills 3x a day
.5mg clonazepam
5mg Lexapro
1,000mg canasa suppositories (PM)
Prilosec-Not sure(Heartburn or maybe GERD)
Fish Oils
GNC Womens Active Formula Multi-vitamin
Colonoscopies-3 and one on the way 8/12/08


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/23/2008 2:25 PM (GMT -6)   
Thank you SO much for your responses, it really helps me. My joint pain is so odd, the first time it hit I thought I sprained my ankle, but then it was fine in the am and then had hit my other foot, toes included. Now I get pulsating pains in my ankle that hit for maybe 30 minutes, or quick pains to my fingers, for example if I use my iphone for awhile my finger starts hurting. Other times I get sharp quick jabs. Its all very odd and of course concerning. My joints are cracking like crazy too. The odd think is I now have these bumps on my nails, like bubbles, I have some indents too, they look like waves on my nails. Of course I looked this up and read it could mean possible arthritis or serious disease ( Great!). They say the fingernails really tell the health of someone. This nail issue just came up a few days ago, they were fine before! I also read some people with UC have skin and nail issues?

At anyrate, it is good to hear that my joint pain sounds like the pain associated with Colitis. I have been to so many drs and just want answers. Of course I wont know anything definative till I get my scope.......
 
I have had the left sided pain on and off for years as well as bm issues. Right when I found out my dad had terminal cancer in May the pain came back so I thought perhaps if I do have UC that this event has caused a "flare".

Thank you all for providing me with your insight..


----------------------------------------------------------------------
 
GERD dx March 2007
Currently no diagnosis from migratory joint/bone pain, feet buzzing, fatigue and dizzy spells
Migraines with Aura


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/23/2008 5:02 PM (GMT -6)   
My joint pain comes and goes as well. It seems to hit my knees mostly - it will last all day and the gone the next. Or I have sporadic sharp "jabs" in other joints. Along with Uc, arthritis is quite common. So you may have a type of arthritis and the description of your nails sound possibly like RA - you don't have any swelling in your joints do you? I'm not saying it is RA but it's a thought. Have you had any blood tests recently? If so, what were they?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
To help Healingwell - click here: DONATE
 
 
 
 

 
 


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 7/23/2008 5:13 PM (GMT -6)   
Very interesting thread. I have consistant though not totally continual pain on my left side between belly button and hip. I have lots of cramps in various place all over the area below and beside my belly button. I don't often have severe pain, but when I do it is, thankfully, short lived.

I never knew so many people with UC have joint pain and seems like almost everyone who responded to this thread has at least some joint pain. it is, as I said, very interesting.

Hope you find some answers at your doctor's appt.
UC diagnosed 10/05, first symptoms 1983
canasa and lialda daily
Trying out Digestive Fitness Probiotic
 


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/23/2008 6:32 PM (GMT -6)   
Red our joint pains sound similiar sometimes long term other times jolts. For awhile I thought it was my bones. I had more labs today a other sed, anti nuc and tests to see if I have endocarditis ( hope that is not it) All tests for ra came back fine a couple wk back also no swelling. The new nail issue is odd and I have a bump that is tender on palm of my hand that keeps getting bigger- hence being tested for endo
----------------------------------------------------------------------
33 yr old femail
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 


redhah
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 7/23/2008 11:17 PM (GMT -6)   
I usually get the "I have to go right now pain", even when I am not having a flare up. I usually get very sharp pains in my lower left abdomen and I have to curl up in a ball because it's the only thing that seems to make it feel better. And during flare ups I always have pain/cramping after I eat something.

As for joint pains, when I have flare ups and am on prednisone my knees and ankles hurt so bad that I can barely walk. My whole body just doesn't feel right. The doctor says that the ulcerative colitis is causing me to have arthritis in my knees and ankles and I'm only 22. Usually prednisone helps people with their joint pain but for be it makes it worse.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/24/2008 1:12 AM (GMT -6)   
What does your pains feel like? Sometimes it feels like my bones are being crushed, other times they are quick jabs? The pains move around daily sometimes. Anyone else have joint pain like this? I am not on medication so thats not the cause of my pain. Still awaiting diagnosis actually. Sounds like I either have colitis or endoconditis at this point. Hoping its the colitis but my symptoms point to both aside from the bm and left sided pain....
 
Now with my stomach the left sided pain has been dull lately but I feel it more after I eat, or right before during or after a BM. It hurt SOO bad a few wks ago I really thought I was about to die, I could not move...so ended up in the ER-again. I hope the joint pain and issue with nails etc is related to this.


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 

Post Edited (king1234) : 7/24/2008 12:42:06 AM (GMT-6)


~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 7/24/2008 1:25 AM (GMT -6)   
My abdominal pain???  Oh man,  it changes so often.....When I'm flaring real bad and have the urgency to have a BM,  I run to the potty,  then sit there in so much pain while my abdomen cramps up so bad that it feels like its trying to push literally EVERYTHING out of my body through my rectum, when in fact only some blood and/mucous come out.    Then I will often periodically during the day have bloating and gassy pains that feel like pressure and jabbing mainly in the left side of my abdomen.  Then theres the feeling like my colon weighs 200lbs,  with every step I take,  I can feel it jiggle around in there, and every movement is painful.     Then theres the  pain that is  more at my butt and internal low colon..its like a constant pressure and burning,  I don't want to sit down...just want to lay on my side.     Then ,  with the flares always come the increase in body aches/arthritis.    Isn't this darn disease FUN?!?  NOT!!   anyways,  thats my low down...
                                          ~Christie
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Currently in complete remission thanks to Remicade!!)
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


Zerxer
New Member


Date Joined Apr 2008
Total Posts : 10
   Posted 7/24/2008 1:33 AM (GMT -6)   
I was diagnosed December of 06 and I've yet to have any type of pains related to UC. It makes me wonder..

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/24/2008 1:38 AM (GMT -6)   
Do you guys always have diareah? See I dont, I usually cant really go (even though I feel like I need to)...more hard and small (sorry I know its not a pretty topic), or they are loose and frequent. I read that colitis is more diareah? Is that really true?

Also, I get a lot of gas at night when I go to the bathroom. I use to think it was part of my GERD, but maybe not?
 
Oh also, my eyes are red all the time now. Have no clue if THAT is related!


----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 


Hans C
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 7/24/2008 4:17 AM (GMT -6)   
My doctor at home told me that it's common for UCers to suffer from constipation rather than diarrhea.
I think he said that it's caused by the colon holding back your faeces to prevent it passing through a vulnerable site.

He advised me to eat/drink things that make me need to go(e.g. for me - coffee).
age 26  ------------- diagnosed 2004 (probable left sided)

Multi-vitamin                                       Lactobacillus acidophillus sachets
Aloe vera - Omega3 fish oil                    Asacol (8x400mg)                     
Iron, folic acid and b12 supplement__________________________________________________ 


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 7/24/2008 4:40 AM (GMT -6)   
My pain to differs from a dull ache to a omg dont know what to do pain they are normally in my lower abdomen and left side also seem to have a pressure feeling like you constantly want to go but am learing to ignor that or would never get out of the loo also have movable joint pain never seems to be in one place U/C is so much fun not.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08
  Mesalazine 400mg 2 tabsx2 day


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/24/2008 6:07 AM (GMT -6)   
The "normal" symptom of Uc is diarrhea but it doesn't necessarily mean that is all you will have. I too gets bouts of constipation now and that is my cue that I am headed for a flare. I may not go for a couple days and when I do go, the stool is usually thin which indicates rectal or higher inflammation. As for you eyes, go get them checked by a doc asap - eye infections and inflammation is common in Uc'ers. Uc'ers can have an eye complication called iritisis and trust me that is something you do not want to mess around with. Even if you don't have any eye infections, anytime something new comes up it's best to be checked out by a doctor just to be on the safe side.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging and herniated discs C5,C6&C7~2nd epidural injection 8/14
To help Healingwell - click here: DONATE
 
 
 
 

 
 


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/24/2008 12:42 PM (GMT -6)   
Thanks alll, it sure sounds like this IS what I have. Can stress bring on a flare?

With your guys joint pain, does it seem to jolts spots at times? Last night I was laying down and my left ankle got a couple quick jolts that spread through my foot, then it was fine.

This morning I ate and as soon as I ate I started to get a real back dull pain and "had to go" (bm was normal though)- I could hardly walk to the bathroom. The best way to describe it is like a bad side stitch (like the pain you get when you eat to quick before excercising!)

Wonder if theses bumps and indents that popped up on my nails have to do with this. They just showed up last week!
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 7/25/2008 12:21 PM (GMT -6)   
I came back to the forums today to find out how others feel during flareups. My symptoms vary so much that it's frustrating. Some days I'm fine some days I'm horrible. I thought I was getting better on Wednesday, but today I woke up with severe D and horrible pain. Not only pain in my abdomen, but pain in my hips, lower back, and legs. I'm also extremely nauseous to the point where I can barely eat anything. The only medication I'm taking is 8 500mg Sulfasalazine tablets daily(4 in morning 4 at night). Should I ask my doctor for something else? I don't know what to do. I'm so worried right now that I may not get this flareup back under control.

And apologies to king1234 for hijacking your thread.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 7/25/2008 12:33 PM (GMT -6)   
My pains are just like Bellski's. I get the gotta go NOW pain, then sometimes pain afterwards (I think that is due to hemms). I have pancolitis, but my current flare only seems to be impacting the tail end of things. Occasionaly I get that sharp pain in my rectum area as well. I have been attributing this to possible

As for joint pain, for some reason my middle finger on my right hand and my right elbow really ache from time to time.
Age: 48
location: Seattle, Wa
currently in small flare, tail end of colon
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day,
Cortifoam at bedtime

Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 7/25/2008 1:33 PM (GMT -6)   
When you uys have joint pain can it vary from a quick stabbing/pulsating pain to then moving to another joint and it lasting longer?
----------------------------------------------------------------------
33 yr old female
 
GERD dx March 2007
Migraines with Aura
Currently no diagnosis for:  migratory joint/bone pain, feet buzzing, fatigue and dizzy spells, bumps and indents on nails.
Also constant left sided pain ( 2 inches left of belly button) GI thinks possible Colitis, getting colonoscopy on 8-8
 

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