UC Surgery in Australia

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Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 7/24/2008 2:16 PM (GMT -6)   
Hi all, I was wondering if any of you have had, or know of someone who has had the UC surgery (Colectomy?) in Australia.

I have been told that surgery is the only option for me and its to happen in 3 weeks.

Really want to see if I can speak to someone about this as I am scared stupid. sad
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 3x Garlic oil capsules & 7mL Olive Leaf Extract twice a day.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/24/2008 2:30 PM (GMT -6)   

I think you would get a lot more response to this question if you posted it on the general discussion board at www.j-pouch.org  There are over 6000 members on that site from all over the world.  You might find some resources and help close to home.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 7/24/2008 2:54 PM (GMT -6)   
Severin - I agree with Sue about checkin out the j-pouch site. Our ostomies board might also be helpful - if you haven't already checked there.

I found a lot of peace with the idea of surgery from reading "It Takes More Than Guts" by philip vanhorn. (I hope I got that all right...) It's about his battle with UC and his decision for surgery and everything he went through.

Thinking of you!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission?!?!?
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Remicade: 1st infusion 06/17/08:  Next (3rd) infusion 08/12/08
Last Prednisone dose:  7/15/08
 
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Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 7/24/2008 3:32 PM (GMT -6)   
Thanks suebear and dakotagirl. I have posted to the Ostomies board and will see what response I get. God this sux, my emotions seem to be on a roller coaster. One minute I think I'm ready and dealing with it, the next I am holding back tears. Ah well, one way or another its going to happen now.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Currently no medications as nothing works any more;
    - Surgery is only option now, just waiting for available theatre.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 7/24/2008 4:26 PM (GMT -6)   
Hey Severin, I can't give you any advice on the surgery end of things, but just wanted you to know that I'm thinking about you. It sounds like the folks who have had the surgery have had positive results.....and I'm sending all my good vibes your way. Take care my friend.

Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 7/24/2008 4:52 PM (GMT -6)   

severin, check out Shaz's ostomy pages... I don't know the address, but google that & it'll come up. Shaz is also one of the moderators on the ostomy forum, & she lives in Australia, I believe. She's awesome- she had surgery when she was like 10! Her attitude is definitely inspiring. Good luck, man!


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/25/2008 5:46 AM (GMT -6)   
I don't have any advice for you either. But I know what you mean about being scared. I read so many stories of people having their surgery. Of being scared witless. But then they come back to us and tell us their story. They usually always say the same thing - yes surgery was rough and painful but they had no regrets because now they are pain and med free. Sometimes you just have to look past the surgery and into the future. Get excited about what you are gaining by this - freedom from pain, freedom from medication and that chain to the toilet. I too am contemplating surgery but it won't happen until next year if possible. So that is what I am thinking about when I think about surgery - the future and the freedom. Hang in there and know that we are here for you. When is the date for surgery?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14 and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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