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mimbot
Regular Member


Date Joined Apr 2008
Total Posts : 22
   Posted 7/24/2008 3:43 PM (GMT -6)   
Hi, i've been having remicade infusions for a couple of months now, i've had four up to now. I've been feeling pretty well so far until now that is, I was told at my last appointment that i needed to be off my prednisolone tabs, so i stopped them on that day. Since then i have had terrible joint pains in my feet and hands, especially first thing in the morning. Has anyone had any similar problems, i could do with some advice, i am absaloutely abusing the pain killers i've been given for my colitis and now coursing constipation, i'm at my wits end HELP!!!!
thanks for listening
Mimbot xx

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/24/2008 3:54 PM (GMT -6)   
What dose were you on when you stopped them, and for how long?? You really should taper off steroids slowly, especially if you've been on them for awhile. \

When prednisone is taken for more than a few weeks, the body becomes accustomed to it and begins to make less of its natural steroids. If prednisone is stopped too quickly, the body does not have time to adjust,

Prednisone withdrawal symptoms can include, but are not limited to:
A general ill feeling
Muscle weakness
Nausea and vomiting
A fever
Low blood pressure (hypotension)
Dehydration
Mental changes
Muscle pain or joint pain
Difficulty breathing
Loss of appetite.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/24/2008 4:13 PM (GMT -6)   
Prednisone should always be tapered slowly; stopping it abruptly can cause serious problems. If it's been a short time since you stopped, you might consider starting the Pred again then tapering at a rate of 5-10 mg. every 10 to 14 days. You could still get some symptoms, but they should be milder.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


mimbot
Regular Member


Date Joined Apr 2008
Total Posts : 22
   Posted 7/24/2008 4:37 PM (GMT -6)   

Hi, thanks for you replies, I was only taking 5mg of pred for about 4 months, i'd already tapered off them but couldn't quite pluck up the courage to stop altogether. I did expect some problems but this is getting so painful i keep thinking about going back on them, any help would be much obliged

thanks

mimbot x


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/25/2008 11:07 AM (GMT -6)   
when I got down to 5mg I had terrible pain in my feet, esp my heels and it was very hard to walk.

talk to your Doc maybe do 5mg every other day for a week then 4mg every other day for a week etc.?
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 25mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


rob_uk
Regular Member


Date Joined Jul 2007
Total Posts : 32
   Posted 7/25/2008 11:21 AM (GMT -6)   
i had joint pain, especially in my knees, when i came off prednisone. i think fish oil helps
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