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Posted 7/24/2008 7:38 PM (GMT -7)
I'm just curious as to how you all found Healingwell?  Was it a web search?  Word of mouth?  A friend's recommendation?

For me, I found HW 4 years ago when trying to find a forum for UC.  I joined a couple of other forums but they weren't very active.  So then I stumbled across HW and was amazed at the mass of info I learned as well as the friendly people and quick responses.  Of course back then, HW was a bit more obscure then it is now.  When I joined, there were about 15,000 members - maybe less.  So I imagine now, it is easier to find then it was before.

 @--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14 and Skelaxin

To help Healingwell - click here: DONATE

Posted 7/24/2008 7:58 PM (GMT -7)
google

26,

Diagnosed with UC June 2008. On Asacol...many questions still unanswered

Posted 7/24/2008 8:26 PM (GMT -7)
google as well

Female, Age 19, Dx w/ UC August 2007

9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day

Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day

*exploring the option of surgery

Posted 7/24/2008 9:06 PM (GMT -7)
I think I was looking around on websites like ccfa.org and then I must have kept searching around the web. That is weird that I can't exactly remember. Oh well, the importanat thing is that I found it! This is a good question.
Lori (Bellski)-age 43 from Illinois

Diagnosed February 2008 with Ulcerative Proctitis,

Currently: mild symptoms / flare ?

Medications:  Asacol 400mg X 6, Canasa X 2 

Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics

High fiber diet

"I thank God that  I found this website!"

Posted 7/24/2008 9:13 PM (GMT -7)
I also stumbled across it surfing the net about 4 yrs ago, I found one other site first, small site but a good one, it's no longer around though, and then I found HW...just active enough for me and a good layout.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 7/24/2008 9:49 PM (GMT -7)
I just found it when I was looking up which of my medicines could be causing my hair to fall out and I stumbled across a page where people were discussing it. It was great.
Posted 7/24/2008 11:14 PM (GMT -7)
I think I might have found HW through the same site as pb. I was using it and they were having problems with people being rude and someone mentioned HW and here I am!
Sam
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

Posted 7/25/2008 12:22 AM (GMT -7)
from a friend

*Heather*Status: mini flare Dec 28... tapered to every 4th night

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals/supplements 

~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally

~multi-digestive enzymes as needed ....zymactive 3 - 5x daily

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 7/25/2008 1:08 AM (GMT -7)
Trying to find any information about U/C was surfing net and come across HW and have never felt better
  

  Diagnosed 22.5.08 with Lft sided U/C

  Meds Predfoam 20mg 2x day stopped started Salofalk supps 1gm 26/6/08

  Mesalazine 400mg 2 tabsx2 day

Posted 7/25/2008 4:24 AM (GMT -7)
I found it when I was searching something about UC, can't remember if it was meds or what. I came across an article from HW. I was not looking for a forum at all, never thought about one. Couldn't believe how helpful it was and how nice everyone was. I lurked around for awhile before I actually joined. One of the better things I have done, because as you all know, you can't really talk much about this to others, they just don't understand it unless they are also going through it.
*******Donna*******

diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)

In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............

currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.

Posted 7/25/2008 5:23 AM (GMT -7)
I Googled "ulcerative colitis support"

Judy

 

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.

Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

 

Co-Moderator UC Forum

Please remember to consult your health care provider when making health-related decisions.

Posted 7/25/2008 6:13 AM (GMT -7)

 I honestly don't remember how I found it but thank God I did. The members on this site have offered me more information and support than any Dr. So let me take this opportunity to say THANK YOU to all. I may not post often but trust me when I say I check this site many times a DAY.

DX Pancolitis 3/2004

Colazol (Generic) 3 tabs 2x a day.

Levothyroxine .137 for Hypothyroidism

Multivitamin

Posted 7/25/2008 6:16 AM (GMT -7)
i googled for UC blogs and forums...this site was the best and most legit looking one i found :)
Posted 7/25/2008 6:16 AM (GMT -7)

Hi,

I just Googled "Ulcerative Colitis Message Board", and this was the first site to come up.

Glad I found it!

:-)
Boy From OZ

UC left side diagnosed 2006

 

Current Meds

Salofalk Enemas 4 gm (daily)

Prednisolone 30 mg

 

Supplements

Metamucil

Probiotic

Omega3 2g (Enteric Coated)

Iron + Vit C

Vit B12 injection (Monthly)

Posted 7/25/2008 6:23 AM (GMT -7)
Well all I can say is that I'm glad you found us too! :)

 @--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14 and Skelaxin

To help Healingwell - click here: DONATE

Posted 7/25/2008 6:27 AM (GMT -7)
Found HW three years ago by surfing the net desperately seeking any info I could find about UC. Thanks heavens for this site!
Carol

Remicade - will have my 22nd infusion on June 12.

Vitamin B-12/Biotin, Probiotics

Co-Moderator for the UC Forum

Posted 7/25/2008 7:26 AM (GMT -7)
I found HW when looking for options with my son's apparent allergic reaction to a sunscreen poor kid is like me a spontaneously com busts in the sun so I needed alternative options and wasn't getting very far on my own. . . . . . then I saw the UC posts and found home!
Kim
~ Mom of Nathaniel aka "Peanut" 18m (6/08)~ Married ~ 36
"The List "
- UC dx 8/2000 - Culturelle 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Anemic - Ferolicit IV on hold (6 weeks free of IV, check in August)
- Allergies - Zyrtec 10mg 

Posted 7/25/2008 8:16 AM (GMT -7)
I was looking for a disscussion forum and I did a search and HW is what came up. It so happened that this was one of the best finds in my life. Thank you HW
Diagnosed July 2005 with Pancolitis

Asacol 4 tabs 3 times daily

Pro-Bio

Forvia

calcium

Diosmin(for leg and vein support)

http://mysite.verizon.net/vzewor6c 


Posted 7/25/2008 8:48 AM (GMT -7)
Googled "uc" and "forum." Couldn't be happier that I found this site!
Katie, 30.   Chicago 'burbs.

DX:  Ulcerative Proctitis (10cm) January '08

Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG (as needed).

Diet/Exercise:  Trying sunflower seed thing.  Daily yoga, walking, or cardio w/weights.

Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.

Status:  Showing improvement after a few days with sunflower seeds.

Posted 7/25/2008 8:55 AM (GMT -7)
surfing the net w/google........not sure what string of words I used. It was almost a year ago, I think........
Beth, 32 ~ hoping to taper pred successfully, wish me luck!

Major Flare Sept/Oct 07

UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07

Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.

Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08

Prednisone 25mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

 

Posted 7/25/2008 9:22 AM (GMT -7)
In the summer of 2001 I stumbled across the news group alt.support.crohns-colitis . It was very active and I got most of my initial information and support from it. A few years later someone posted a message on that news group about a new Ulcerative Colitis forum on HealingWell. I immediately checked it out but there was very little activity on it so I just forgot about it. In December 2005 I was searching on information about a clinical trial for Adacolumn Apheresis that I was about to enter. I found a thread on HealingWell from someone that was well into the trial so I finally joined HealingWell. At first I didn’t post much because I was well established on the news group. Over the years Activity on alt.support.crohns-colitis has dropped off considerable and HeallingWell has increased, so for the last few years I have been hear more that the news group. News groups have lost popularity in the last few years, especially after many internet providers have dropped them including mine. I now access my news groups through Google Groups, not nearly as good as a good news reader and a news group server.
Paul

Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement

Folic Acid and B12 injections.

Abatacept trial - no effect

 Visit our photo albums at: http://www.laflammefamily.ca and http://www.more.laflammefamily.ca

 


Posted 7/25/2008 9:29 AM (GMT -7)
Hmm... You know, I honestly don't remember but I'm sure I typed in something in Yahoo search (it's all I ever use) and a healing well post popped up in the top results. I don't even remember what my first post was!

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day


Posted 7/25/2008 10:57 AM (GMT -7)
google
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Posted 7/25/2008 11:13 AM (GMT -7)
I was using GOOGLE to pursue physician info. & suddenly found a (very positive) quotation about my gastro posted on j-pouch site by another patient. When I checked out the full quote on that site I found several references to HW's forums in other posts there-- so I came on over! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Posted 7/25/2008 11:14 AM (GMT -7)
I used Google too. Not exactly sure what words I used, but I was looking more of a discussion forum at the time to learn how others deal with this and what their symptoms are like for them. I have learned a lot and know that I am welcomed and not alone with this. I don't have medical insurance and I don't trust doctors so I needed a place where I could find alternatives. I still have my colonoscopies every 5 years to check up on things.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.

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