How did YOU find Healingwell?

I'm just curious as to how you all found Healingwell?  Was it a web search?  Word of mouth?  A friend's recommendation?

google

google as well

I think I was looking around on websites like ccfa.org and then I must have kept searching around the web. That is weird that I can't exactly remember. Oh well, the importanat thing is that I found it! This is a good question.

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Lori (Bellski)-age 43 from Illinois

I also stumbled across it surfing the net about 4 yrs ago, I found one other site first, small site but a good one, it's no longer around though, and then I found HW...just active enough for me and a good layout.

:)

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My bum is broken....there's a big crack down the middle of it!  LOL  :)

I just found it when I was looking up which of my medicines could be causing my hair to fall out and I stumbled across a page where people were discussing it. It was great.

I think I might have found HW through the same site as pb. I was using it and they were having problems with people being rude and someone mentioned HW and here I am!

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Sam
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

from a friend

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Trying to find any information about U/C was surfing net and come across HW and have never felt better

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I found it when I was searching something about UC, can't remember if it was meds or what. I came across an article from HW. I was not looking for a forum at all, never thought about one. Couldn't believe how helpful it was and how nice everyone was. I lurked around for awhile before I actually joined. One of the better things I have done, because as you all know, you can't really talk much about this to others, they just don't understand it unless they are also going through it.

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*******Donna*******

I Googled "ulcerative colitis support" Please remember to consult your health care provider when making health-related decisions.

 I honestly don't remember how I found it but thank God I did. The members on this site have offered me more information and support than any Dr. So let me take this opportunity to say THANK YOU to all. I may not post often but trust me when I say I check this site many times a DAY.

i googled for UC blogs and forums...this site was the best and most legit looking one i found :)

Hi,

I just Googled "Ulcerative Colitis Message Board", and this was the first site to come up.

Glad I found it!

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Boy From OZ

Well all I can say is that I'm glad you found us too! :)

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Found HW three years ago by surfing the net desperately seeking any info I could find about UC. Thanks heavens for this site!

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Carol

Remicade - will have my 22nd infusion on June 12.

I found HW when looking for options with my son's apparent allergic reaction to a sunscreen poor kid is like me a spontaneously com busts in the sun so I needed alternative options and wasn't getting very far on my own. . . . . . then I saw the UC posts and found home!

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I was looking for a disscussion forum and I did a search and HW is what came up. It so happened that this was one of the best finds in my life. Thank you HW

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Googled "uc" and "forum." Couldn't be happier that I found this site!

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Katie, 30.   Chicago 'burbs.

surfing the net w/google........not sure what string of words I used. It was almost a year ago, I think........

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Beth, 32 ~ hoping to taper pred successfully, wish me luck!

In the summer of 2001 I stumbled across the news group alt.support.crohns-colitis . It was very active and I got most of my initial information and support from it. A few years later someone posted a message on that news group about a new Ulcerative Colitis forum on HealingWell. I immediately checked it out but there was very little activity on it so I just forgot about it. In December 2005 I was searching on information about a clinical trial for Adacolumn Apheresis that I was about to enter. I found a thread on HealingWell from someone that was well into the trial so I finally joined HealingWell. At first I didn’t post much because I was well established on the news group. Over the years Activity on alt.support.crohns-colitis has dropped off considerable and HeallingWell has increased, so for the last few years I have been hear more that the news group. News groups have lost popularity in the last few years, especially after many internet providers have dropped them including mine. I now access my news groups through Google Groups, not nearly as good as a good news reader and a news group server.

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Hmm... You know, I honestly don't remember but I'm sure I typed in something in Yahoo search (it's all I ever use) and a healing well post popped up in the top results. I don't even remember what my first post was!

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Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

google

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Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

I was using GOOGLE to pursue physician info. & suddenly found a (very positive) quotation about my gastro posted on j-pouch site by another patient. When I checked out the full quote on that site I found several references to HW's forums in other posts there-- so I came on over! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

I used Google too. Not exactly sure what words I used, but I was looking more of a discussion forum at the time to learn how others deal with this and what their symptoms are like for them. I have learned a lot and know that I am welcomed and not alone with this. I don't have medical insurance and I don't trust doctors so I needed a place where I could find alternatives. I still have my colonoscopies every 5 years to check up on things.

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- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 4 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.