JRob - we are in a similiar situation. How long have you been on prednisone? Have you tried asacol? I was originally on that 2 years ago and I took myself off of it when I got pg back in January. The Docs switched me to colazal when I was hospitalized...said he reaches the rectum better than the asacol for proctitis patients.
Right now I am pretty symptom free..since last Saturday night. I plan to drop the prednisone Tuesday. For some reason my Doc. keep saying drop it in 10mgs. I have such pain in my legs and a terrible rash on my chest...not to mention the other side effects.
I am doing the canasa in the AM and the hydrocortisone enema at night. Hoping to taper that soon.
The problem/worry I have is...I was only in remission with no blood from when I was released from the hospital in March, through tapering and having one month and a half of just being on colazal.
So I am wondering if the colazal works or is asacol the drug for me? And why don't I just take canasa as a precautionary drug every morning. I have all these questions....
ulcerative proctitis - march 05 diagnosed
current status - bad flare
colazal - 9 pills
40mgs 30mgs, canasa -AM, hydrocortisone enema - PM
fish oil, flaxseed oil, bee pollen/royal jelly & garlic, calcium & vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex