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Sarahaw
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/25/2008 10:40 PM (GMT -6)   
Does anyone use Humira? If so, how is it working? And did you get off all of your pills?

jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 7/26/2008 6:35 AM (GMT -6)   
Saw my GI two days ago, and he wants me to do this, but only after it is approved for UC patients. He said it's only available for Crohn's patients now. He said it works like Remicade only you inject yourself in your home once a month. He said there are less side effects with Humira too.
Age: 30
Sex: Yes please!
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day, tapering 30mg Prednisone, 2 Lialda, Mesa rectal meds
Supplements: calcium, and multivitamin
No. of colonoscopies: 5
Last scope: 6/7/08-everything looked ok.
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/26/2008 9:13 AM (GMT -6)   
Generally, when on a biological such as Humira or Remicade, we continue taking one of the 5-ASA drugs. This not helps to combat the inflammation, but helps to decrease our chance of getting colon cancer. And as jars said, Humira is not yet FDA-approved for UC, although the testing is being done. Because of this many insurers won't cover it; you'd need to check with your health insurance to see if they would pay for the medication.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 7/26/2008 2:12 PM (GMT -6)   
I am doing well on Humira, I am finally free from Prednisone, but I still take a few Asacol each day. I've been on Humira since February.
32 year-old female
dx-ed in 2007
Humira
Asacol
probiotics
in remission- finally!


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 7/26/2008 9:34 PM (GMT -6)   
I have been on it since April and it hasn't worked that great, unfortunately. I am seeing a little extra improvement since adding on 6MP to it but it hasn't been a miracle drug for me and I had to struggle to get my insurance to cover it.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 7/27/2008 6:34 PM (GMT -6)   

I am in a clinical trial for Humira (since it isn't yet approved for UC).  It is a double blind study, so no one knows for sure who is getting the medication, at least for the first twelve weeks in some cases.  I responded within the first week and haven't had blood since.  I am now at week 14 and still doing well.  I am currently tapering off of pred, and have had some issues with that, but nothing major.

I am also on Asacol and I don't think there is any intention of them taking me off of that one, so as soon as I am done with the pred, I will be down to the injections (which are bi-weekly) and the asacol.  Definitely manageable.

My GI also told me that there are fewer side effects from Humira than Remicade-he thinks it is a "better" drug.  So far, I am reponding well, and they have said that everyone else in the trial has been as well.  There was one exception, but at the 12 week mark, they switched him to the open label study (to make sure he was actually getting the med) and since then, he has also responded well.  I believe there are 8 of us currently involved in my local study group. 

Oh, and I have been told the injections, which like I said are bi-weekly, will remain bi-weekly for the long haul.


Laura
 
33 years old, stay at home mom of 2 girls, ages 3 and 21 months
 
Diagnosed in 2007
Currently on:
Prednisone 12.5mg/day and tapering-UGH
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!

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