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WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 7/26/2008 6:18 AM (GMT -6)   
Because I am new on the Board....I was wondering...are there people out there with success stories about proctitis they can share?
 
What meds have kept you in remission? Did you change your diet? Doing anything holistic? Etc...
 
You can see my siggy....but I am in the tapering period w/ my prednisone. For some reason my Doc tells me to drop in 10mgs every 7 days. I have been on 40mgs of prednisone since July 8th and I dropped on Wednesday to 30mgs. I did TRY to drop last week and 2 days later the bleeding started.
 
 
ulcerative proctitis - march 05 diagnosed
current status - bad flare
My Cocktail:
colazal - 9 pills
prednisone -40mgs (hope to begin taper 7/24)
canasa suppository -AM
hydrocortisone enema - PM
VSL#3
fish oil
bee pollen/royal jelly
garlic
calcium & vitamin d 2x a day
prenatal vitamin plus extra vitamin c and b12 complex
AND ACCUPUNCTURE
(not to mention 20mgs of lexapro and klonopin as needed)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/26/2008 10:07 AM (GMT -6)   
Welcome to HealingWell. I hope you find the people here as helpful and supportive as I have. I have proctosigmoiditis, and have been on a lot of different medications without achieving remission. Finally got there with Remicade.

You may be tapering too quickly. Try decreasing by 5 mg. every 7-10 days. It will take longer, but could be successful. Then again, many of us become steroid dependent and flare every time we try to wean off. And you definitely don't want to use steroids long-term.

I do have one request, WishfulMA. We ask that signatures be limited to no more than ten lines, including blank lines. The forum administrator requests this to help save on bandwidth, so it would be appreciated if you can edit yours down to ten lines. Thanks, and welcome again to HealingWell!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/26/2008 11:13 AM (GMT -6)   
Welcome. I have Ulceraative Proctitis, diagnosed this year. I do well with 6 asacol a day and canasa kind of as needed.. I use probiotics and take vitamins. I feel better when I am eating healthy and drinking water. It sounds like you've been through a lot more than me. I hope you feel better soon. Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/26/2008 11:47 AM (GMT -6)   
I highly recommend rectal meds, I like cortifoam myself for when my proctitis acts up, it's a steroid foam and since it hits the spot directly in the rectom it usually works much quicker than oral meds and little to no side-effects because not near the amount of steroid is entering your blood stream like with oral pred.

Keep using rectal meds and then slowly taper off when you feel things are "back to normal".

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 7/26/2008 3:55 PM (GMT -6)   
Thank you all for your responses!!!

I guess that is what I am worried about....I got off steriods back in April and then flared back up in the beginning of June. I am going to remain on the 30mgs till Tuesday and then I guess drop by 5mgs?! But why hasn't my Doctor suggested 5mgs drops? Last night when I spoke to her I said, "so far so good on the 30mgs"..."what if I flare this weekend" ...she said ..."go back to 40mgs". Its just scaring me. I want to move forward and at least know that I will not need 6MP or Remicade...I want to start up IVF again as soon as I am in remission (for a month). I am just in such limbo.
ulcerative proctitis - march 05 diagnosed
current status - bad flare
My Cocktail:
colazal - 9 pills
prednisone -40mgs (hope to begin taper 7/24)
canasa suppository -AM
hydrocortisone enema - PM
VSL#3
fish oil
bee pollen/royal jelly
garlic
calcium & vitamin d 2x a day
prenatal vitamin plus extra vitamin c and b12 complex
AND ACCUPUNCTURE
(not to mention 20mgs of lexapro and klonopin as needed)


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 7/28/2008 9:10 AM (GMT -6)   
I have had great success with Salofalk suppositories (500mg) (I think it is the same as Canasa???). It works within 12 hours and after a week I can start weaning off. I find when I am tapering and only using one per day, it works best if I use them at bedtime, rather than morning, not sure why.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 

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