Welcome to HealingWell. I hope you find the people here as helpful and supportive as I have. I have proctosigmoiditis, and have been on a lot of different medications without achieving remission. Finally got there with Remicade.
You may be tapering too quickly. Try decreasing by 5 mg. every 7-10 days. It will take longer, but could be successful. Then again, many of us become steroid dependent and flare every time we try to wean off. And you definitely don't want to use steroids long-term.
I do have one request, WishfulMA. We ask that signatures be limited to no more than ten lines, including blank lines. The forum administrator requests this to help save on bandwidth, so it would be appreciated if you can edit yours down to ten lines. Thanks, and welcome again to HealingWell!
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.