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MamaDove
Regular Member


Date Joined Dec 2006
Total Posts : 181
   Posted 7/26/2008 8:53 AM (GMT -6)   
 
I need some expert opinions here...Please :-)
 
Quick history~rectal bleeding began in 1995 while tkaing motrin and zoloft for a neck injury...
Only had flares while living in Maine...Back home in NY I was fine, stressed out but fine...Sound strange allready?
 
19 months ago I was hospitalized 3 times, each time they made me worse or gave me something new...Infection and blood clots along with near death from levaquin/solumedrol combo which affected my entire body horribly...Very long story there...DX with Crohn's/colitis in 2006/07
 
I came home with Colazal, 80mg of pred and began supplements, includig Omega 3's, D, Calcium & Magnesium...
 
Changed diet completely...
 
Had Sage Allergy testing and found NO dairy, beef, and others which I gladly gave up...Within 2 weeks, normal stools and no blood...3 days later, here we go again...
 
Had CDSA and that found high calprotectin (218), high fecal fat (I barely eat any fat) and NO beneficial bacteria...Trying to rectify this by beginning yogurt nightly with my LDN (started LDN on 6-16)Also showed fat malabsorption and low vitamin D levels...
 
For 15 months since hospitalization  I have had burning tail bone pain(that began from Levaquin, nerve damage) that eventually rectified a few months back but then my rectum felt like it wasn't strong anymore...No ability to hold back bm...That rectified in weeks and then came these lil yellow pea sized bms with fuzzy blood...Sorry for the graphics but it tells the whole story...
I began exercises which made it worse, now I have hardly any control and bms are all liquid,
forcefully squirting and lots of blood on wipe and bowl...
 
It is especially problematic with my period...In fact, my last exaserbation came on with my cycle then every month thereafter which got me onto the endometriosis trail, the rectal issues used to subside after the period ended but now it's all month long...
 
I have added psyllium and watch my diet carefully...still no dairy and I try not to overdo my supps...I keep journals of what I eat, what supps I take, the weather etc...looking for a cause of this mess...
 
Great part is that LDN has literally blasted away all of my prior symptoms but the rectal bleeding, which is why I started it in the first place...
 
I have all new docs, one is an Integrative Doc and we use remedies and magnets and it has benn nothing short of a miracle that this  has been the only positive treatment I have ever had...all the others have made me worse and drugs only make me toxic and more symptomatic...I have looked up 'liquid stools' and don't come up with much...
 
I fear that my muscles, veins and such are damaged from what I went through...I have no abdominal pain but still swell upon doing too much or standing or sitting too long...
 
Anyone have any ideas???
 
If you think you need more info to help me, please take the time to ask me...
 
If only I could stop this nonsense, I would be 100%...A goal I have been dreaming about for 13 years but moreso since my ordeal in 06/07...I need to figure this out, once and for all...
 
My proctologist does not believe I have IBD but I will see him next month to pick his brain some more...I am not anemic and also do not appear sick yet my PCP says my tests indicate auto-immune and inflammation...I know this allready redface
 
Thanks for taking the time to read and possibly make some suggestions...Looking forward to hearing from you...
 
Peace~MamaDove

Post Edited (MamaDove) : 7/26/2008 8:42:37 AM (GMT-6)


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/26/2008 9:15 AM (GMT -6)   

I suggest you consult with a gastroenterologist.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


quincy
Elite Member


Date Joined May 2003
Total Posts : 30705
   Posted 7/26/2008 11:48 AM (GMT -6)   
I suggest the same....strongly.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 7/26/2008 11:54 AM (GMT -6)   
They diagnosed Crohns/ UC, so are you still under the care of a good gastro? How could the new doc deny IBD?
Time for a colonoscopy, me thinks! Liquid stools need attention.
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Asacol, Prednizone 50mg, major flare, now off!, Hosp. @U of C, Comers twice this yr. Low residue diet still
began 6MP, ,horrible acne, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30705
   Posted 7/26/2008 12:02 PM (GMT -6)   
CD and UC don't come together...maybe Crohn's colitis is the diagnosis?

Biopsies can confirm if there's something else going on as well as stool samples.

Microscopic colitis is one that can present the same as UC.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 7/26/2008 4:28 PM (GMT -6)   
Be sure to get a decent gastroenterologist. Mine simply told me, after routine stool samples and a colonoscopy, that I would just have to find a way to cope with liquid movements. No more treatment or tests.
21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics.

 

  • 3 500mg Pentasa a day
  • Probiotic
  • Psyllium powder.


serothschild
Regular Member


Date Joined Jul 2008
Total Posts : 24
   Posted 7/26/2008 9:45 PM (GMT -6)   
Your symptoms all sound like what I have when I'm in the midst of a colitis flare...pea sized, mucousy, bloody terds and all. Talk with a good gastro guy.
Sandra

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