r there parents of uc kids out there?

[ << Previous Thread | Next Thread >> ]

klk Regular Member Date Joined Apr 2006 Total Posts : 79	Posted 7/26/2008 4:42 PM (GMT -6)
	hi all! i have crohn's and have used this site so much. it's been very helpful - especially before my surgery! my 8 yr. old niece has been diagnosed w/ uc this yr & has had a horrible time - bleeding, complete bowel rest, tpn, lengthy hosp. stays, different meds to try, finally the md's began her on remicade and her 1st infusion went well. (she's currently in hospital). it's been a very difficult family year. my brother and wife feel very "alone" in this, they haven't met anyone (parents w/ a uc child) and are looking for support. anyone out there who can relate? i will refer them to this site! thanks so much! klk Back to Top

jujub Forum Moderator Date Joined Mar 2003 Total Posts : 10407	Posted 7/26/2008 5:52 PM (GMT -6)
	Klk, we do have some parents of children with UC here, but your family may also want to check this board, which is exclusively for parents of children with IBD: http://www.dragonpack.com/ibdsupport/parents/ Parents who use dragonpack rave about it. I'm always so sorry to hear another child has UC. Give your niece a big hug for me. Judy Moderate to severe left-sided UC (21 cm) diagnosed 2001. Avascular necrosis in both shoulders is my "forever" gift from Entocort. Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006. Co-Moderator UC Forum Please remember to consult your health care provider when making health-related decisions. Back to Top

ithurtsmom Regular Member Date Joined Nov 2006 Total Posts : 289	Posted 7/26/2008 8:37 PM (GMT -6)
	KLK, my DD was diagnosed at age 5. It's enought to make you out of your mind when you have a sick child. Please let me know they are not alone. Joan Daughter 5, UC Pentasa 2X2 daily Omega 3 Folic Acid 1000mcg. Fiber Probiotics Back to Top

JewelsOK Regular Member Date Joined Jun 2007 Total Posts : 364	Posted 7/26/2008 8:58 PM (GMT -6)
	Definitely have them check out the dragonpack link above! I have two kids with UC and enjoy both Healing Well and dragonpack, but dragonpack is where you get more info/support based on the issues that little ones face with this disease that isn't always talked about here like growth issues, school problems, and stuff. Sorry to hear about another kiddo with this disease!! Julie Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle Back to Top

klk Regular Member Date Joined Apr 2006 Total Posts : 79	Posted 7/27/2008 3:23 PM (GMT -6)
	thank you parents! will pass the info along! Back to Top

Mark & Megan Regular Member Date Joined Jun 2008 Total Posts : 89	Posted 7/28/2008 5:02 PM (GMT -6)
	Visit Kimberly's site, she is the Mom of a 2 year old with UC who is headed into surgery soon, her blog is: sweetsliceoflife.wordpress.com I know she is member of dragonpack.com Mark & Megan 7 yrs UC to 1 year J-Pouch Surgery Photo & Journal below: http://ucstory.wordpress.com/ We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD! Back to Top

~ChristieAnn67~ Regular Member Date Joined Dec 2007 Total Posts : 151	Posted 7/29/2008 11:36 PM (GMT -6)
	OH , I"m so glad for this thread. Not for me, but for the parents of UC'ers. It must be soooooooo hard to be a parent and have to watch your child go through it. I can't (or don't even want to) imagine how hard it is....any support they can get is detrimental! So, in addition to the wonderful suggestions above, I'll add mine....I belong to this social networking site, http://www.wearecrohns.org and its a GREAT site where I"ve connected with wonderful people and great ideas, and resources, but there is a community on that site that is called "My child has Crohns" I do know there are alot of UCers on the site...maybe check it out....Or you could start a new community called "my child has UC"....who knows....but thought it would be good to mention.... the community can be found at http://www.wearecrohns.org/child *~Christie* 41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo). Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare. Medications Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily, and pro-biotics daily. http://www.wearecrohns.org/christie67 Back to Top

Forum Information

Currently it is Monday, April 23, 2018 12:00 AM (GMT -6)
There are a total of 2,954,463 posts in 324,123 threads.
View Active Threads

Who's Online

This forum has 162163 registered members. Please welcome our newest member, Kburch.
211 Guest(s), 4 Registered Member(s) are currently online. Details
Abhirraai, KYLEb23, Sheeks175, NotQuiteAntonio