Tomorrow morning my wife, 6 year old daughter and myself catch a flight from Toronto to Vancouver where we will stay for 3 nights. We plan to see as much of Vancouver as we can. We even have a bus tour booked to take us to Whistler BC for a day. Whistler is the main site for the upcoming 2010 winter Olympics. On Wednesday of next week we board a cruise ship in Vancouver and head for Anchorage with stops in Ketchikan, Juneau, Skagway, Sitka, and Whittier near Anchorage. My wife’s cousin and her husband will pick us up and we will stay at there house in Anchorage. They booked a cabin in Homer, about
4 hours south of Anchorage and the 5 of us will stay there for 2 nights. We will then head to Denali State Park, 5 hours north of Anchorage and stay there for 2 nights. We will spend a total of 4 nights in Anchorage before flying back to Toronto. We have planed this trip since before Christmas and it is finally here.
My UC has not been that great with severe joint pain and arthritis. I have been having 7 to 8 urgent bloody BMs per day. I started 40 mg per day of prednisone last Wednesday and within one day my joint pain and arthritis has improved greatly. In fact I was able to wash my feet in the shower for the first time in several months. My BMs have only improved slightly at about
5 or 6 per day but still urgent. I hope it gets better. There is internet access on the ship but it is expensive and I may not have time to check in on this forum so I’ll talk to everyone when we get back on August 15.
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect