I started on remicade back in Nov. during my 1st hospitalization with my UC> I had been on very high steroids for weeks, and was getting absolutely no relief in the worst flare I'd ever had. After several days of being in the hospital, my GI finally had a defeated look on his face and mentioned the S word....SURGERY. He said that some people are ready for it and some are totally against it, and no one can tell you when its best, only you know. But he did talk with me about
it and gave the speel. I listened with an
open mind, but he did mention as a last effort we could try remicade. I was
open to this as well....So the next day they gave me my first infusion...and I was out of the hospital the next day. I did so well, that I considered myself in complete remission. I even caught a few stomach flu bugs from my kids, and where it used to always put me in a flare, this time I recovered just like they did..within 24 to 48 hours. The only issue I ever had was during my monthly menstrual cycle, I'd get a some loose stools, and GI upset, but would get better as the period ended. Until this last month about
July 1st!!! It just progressed into a full flare, and my next infusion isn't until the 31st. So, I have had to go on the prednisone taper...symptoms seem to be improved, i just hope it continues. I have heard of people that are getting remicade, having it lose its effectiveness. I just hope and pray thats not the case for me........Remicade can be very helpful, but I would suggest knowing the ins and outs of it before taking it. There are serious potential side effects (just like all those meds we have to take). But knowledge is your best tool for making a good well informed decision regarding whether to take it or not. good luck on your journey to remission!!
41 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo). Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05. (Complete remission from Nov. 07 to July 08 d/t Remicade) hoping for remission again after this current flare.
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07, 2/14/08, 4/10/08, 6/08, 6-MP 100mg daily, Pentasa 500mg twice a day, Lantus insulin 15 units daily, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily, and pro-biotics daily. http://www.wearecrohns.org/christie67