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WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 7/27/2008 5:40 PM (GMT -6)   
I started bleeding back in January after a d&c. I had a miscarriage and basically a week later I was having a "flare up". At the time I wasn't on any meds because I thought since I was in remission for 1 year and I was preggers that It was no big deal. So I went back on my asacol and tried canasa, tried the foam, everything plus the 12 asacol. I was not getting any better and bleeding was significant. Going 15 plus times a day. Finally I agreed to taking prednisone. I took it for over a week and my symptoms got worse. I was weak...and frankly so mentally drained. I had another sig done and they just ended up admitting me to the hospital for IV steriods. I was a anemic as well. I stayed in the hospital for 6 days and got instantly better. I also got switched to colazal. I was doing an enema (Rowasa in the AM and the steriod enema at night). When I got released I was released on prednisone 40mgs and the above.
 
I was tapering my meds and have been fine since..up until June 13th when I saw blood.
 
Symtoms are a lot less this time around. I wasn't going as frequently, not as much blood and I also caught it in time. I did a sig back on July 8th and it showed severe procitis. My Dr. knew i was in the middle of an IVF cycle and basically said I should cancel and get everything under control. MY IVF dr didnt want me to be sick or that many mgs of prednsisone., etc and try to cycle.
 
Anyway, that is my story. I am so determinded to get pregnant but I need to find a balance here. FLARING every2-3 months is not good. I also noticed that both of my flares were after "Hospital procedures". Back in January I had a d&c and then 2 days before my June flare I had a lump removed from my breast. Perhaps they pumped me with NSAIDS, perhaps the stress...who knows.
 
I am playing with my diet right now and I certainly think the VSL#3 was a better choice for me over the other probiotics I am taking. I am taking fish oil and doing accupuncture.
 
I am having a very very very hard time with the prednisone....so for me, I have to get off as quickly as possible. I know I am risking a flare up....
 
The taper they had me on in March/April was dropping in 10mgs every week....
Do you all think that is why I flared in June???? I stopped the pred back in April????
ulcerative proctitis - march 05 diagnosed
current status - bad flare
colazal - 9 pills
prednisone -40mgs 30mgs, canasa -AM, hydrocortisone enema - PM
VSL#3
fish oil, flaxseed oil, bee pollen/royal jelly & garlic, calcium & vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex
ACCUPUNCTURE
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/28/2008 6:22 AM (GMT -6)   
bummer.. its so hard to tell why your flaring.
i had a year and 4 month long horrible flare through my whole colon and no meds worked at all.
it was just gone one day (dec 6 08) with not a single symptom until the end of may 08.

so many meds its hard to tell why.
could just be your flaring cuz that is what this stupid disease does.
comes and goes as it pleases.

it could be the stress. i think mine came back from stress. doc says its definitely possible that stress triggers flare ups.
i havent as yet resorted to secluding myself in an ashram in india or anything, but i heard acupuncture does help. thinking about trying it.
how is going for you?

also... im in the process of "not really 'trying'" to get pregnant, but off the birth control (and seeing what happens).
now im flaring again and i dont know if i want to be preggers while flaring. its bad enuf as it is on my body with this disease that being preggers might not be so fun. i become anemic every few months since i lose so much blood.
and losing weight isnt good for being preggers either. plus all the stupid meds and feeling crappy all day... i cant imagine morning sickness as well.

just this morning about 5am i was on the can in the middle of a painful howl inducing crap, puking in a plastic bag and had toilet paper stuffed in my nostril from a nose bleed. ALL AT THE SAME TIME. oh and did i say i was crying too? jeez, a perfect picture of misery. hehe.

not a good situation is it.
im very sorry to hear that things arent going so well for you.
i had and am having a hard time with the pred as well.
i wish i had some good advice, but everything im told to do doesnt really work, so im not much help sorry.
but i am sending you good vibes or well wishes or whatever you want to call them :-) lots of em!
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 7/28/2008 6:50 AM (GMT -6)   
For your flares were you in the middle of IVF treatments for both.  I am thinking the change in hormone levels may trigger your flares??  I and many others on here see a direct correlation between hormones and UC flares.  Any thoughts on that??

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 7/28/2008 8:36 AM (GMT -6)   
the first flare was after my d&c when I had a miscarriage back in january. the second flare up (fathers day) i was not in the middle of treatments. I was on the birth control pill because i was starting my 3rd ivf cycle. i have NEVER taking the pill before. but it was part of the protocal i was tryng for ivf. the next round i am NOT touching the pill.
ulcerative proctitis - march 05 diagnosed
current status - bad flare
colazal - 9 pills
prednisone -40mgs 30mgs, canasa -AM, hydrocortisone enema - PM
VSL#3
fish oil, flaxseed oil, bee pollen/royal jelly & garlic, calcium & vitamin d 2x a day, prenatal vitamin plus extra vitamin c and b12 complex
ACCUPUNCTURE
 

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