Thanks for understanding the need to vent. . . I just needed to blow off and then take some time to wrap my head around it again. I'm frustrated that my body doesn't work right but also frustrated with the "guessing" I'd rather have them say "We're not sure but still looking" than to have them tell me (this last time)
"You were pregnant and then nursing so that's why you didn't come up until now, should be ok from here out" then a month later get a call "we need you back for IV ASAP because your dropping more than we thought you would." Just say that they don't know, why is that so hard for them to admit to?
Testing. . . oh boy I've had as many needles from that as I have from the IVs lol. Let me see if I can recall them all.....
I was spilling proteing because of my Kidneys so they were tested as the iron drain. . .negative
Again the protein so they thought Kidneys were pulling from bone marrow and bones were sucking iron.... negative
B-12 - negative it's perfectly normal, giving me more would make me sick
cancer markers - negative (hemo is also an oncologist office so they tested everything)
endometriosis - negative
infectious diseases - negative, I can't remember all they checked for but I gave 14 vials of blood at one sitting for it. I do know lyme, lupus, HIV and others were in there and some others that they only check if youhave animals living with you, which I do
autoimmune markers - I can honestly say I have no idea, I can ask.
I honestly can't think of what else at this point. If you know of anymore I can ask about I'm all ears!
I'm hoping that this one goes smoother like that last one did when they weren't cleaning the chairs and hopefully we can determin that the cleaner was what I was reacting to and not the IV itself.
~ Mom of Nathaniel aka "Peanut" 18m (6/08)~ Married ~ 36"The List "
- UC dx 8/2000 -
Culturelle Align 1x day Prenatal Vitamin (Currently not flaring but not what I would call in remission either.)
- CKD Stage 3 (Chronic Kidney Disease) - Lisinopril 7.5mg - Still have 27% function!
- Ferolicit IV monthly
- Allergies - Zyrtec 10mg