Hang in there you can do it! You have been through so much already since you were 5, that is amazing! Every day is a new day and you can make it better than the day before. I was scared of remicade too, but heck, I think I got kidney disease from sulfasalazine which is a class B drug.......but my liver is doing fine on azathioprine which is a class D drug......you just don't know.
Try to look at this as a new possible begining, Remicade could be the right drug for you. Many ppl here do very well on it. Also, in the meantime I would try to find a Humira study you could get on just in case. That is why I am going for a 2nd at MGH Chron's and Colitis, I know they had a study there and I want that as an option for me.
Please keep us posted! Try to hope for the best (I know it is hard!).
Beth, 32 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 25mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!