You mention you will probably get IV steroids in the hospital. This year I was bleeding heavy and 60mg prednisone at home wasn't working. So I was hospitalized and given IV steroids (100 mg solumedrol) which did eventually stop the bleeding. But steroids take a toll on your body, I can understand why doctors want to use 6mp, Imuran, or Remicade to avoid repeating the steroid thing over and over again. I think the steroids or the remicade or the combo will stop your bleeding which will be a big relief. Another smaller relief will be when they give you just a simple fluid IV, I bet you are dehydrated to some extent. A while on the IV perked me up long before my bleeding stopped. I had wild anxiety, tension, moodiness, depression, and kinda crazy thoughts due to the IV steroids and/or sleeping meds (ambien) in the hospital. And I was very wired from the steroids. But then when I got off the IV steroids and sleeping meds and went home I started returning to my own personality. At home even though my steroid dose was still high at first (80 mg prednisone) it wasn't nearly as intense as having it intravenously. I think it was mainly the steroids magnifying the fear and anxiety I already had. I'm not trying to scare you about
the mood/anxiety stuff, but to tell you if it happens to you (it may not, everyone reacts differently) that it will subside when you get off the IV steroids and you'll start feeling more of the "normal you" gradually. I wish someone would have told me that anxiety was a possible effect of IV steroids and that it would go away as I'd come down to lower doses. I didn't know it was a possible IV steroid side effect, I was wondering if I was going a bit crazy just from stuff my own head (not realizing how much of it was chemistry). If you get more anxious on the IV steroids, keep breathing, deeply... this too shall pass!
- female 41
- diagnosed ulcerative colitis Feb 2005
- currently 15mg prednisone (tapering down from 80mg), 75 mg 6-MP/mercaptopurine/purinethol, asacol/mesalamine 4800mg (4 pills x 3 times day), 1 Canasa 1000mg nightly
- VSL#3, Benefiber, multivitamin, chewable calcium, fish oil, sometimes iron pills
Post Edited (piper_chris) : 7/31/2008 12:38:19 AM (GMT-6)