egd/colonscopy done

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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/30/2008 1:26 PM (GMT -7)   
So the scopes went well today... I finished my prep this morning but right before my procedure I still was passing some yellow cloudy liquid, I guess it was okay though. The doctor told me that when they first put the scope in it looked really diseased and he was worried but then as he went along it looked better he said. My esophagus was fine but a little tight (although it's really sore now) and he said it looked like the disease was just active up to the sigmoid colon but he took biopsies from all over in case the disease was just "quiet" in the rest of the colon, since he could see scarring and evidence of UC throughout the whole thing.
Afterward though I woke up and they were like "pass some air and I can give you something to drink" and my stomach really hurt so I had to let some go (luckily it was quiet, haha) but I was afraid to because when I woke up it already felt ..uhm, wet, and I was afraid that maybe it was liquid stool that didn't get passed, but figured it was probably just KY or something from the scope. Finally, they let me get up to the bathroom and I sat on the toilet and blood just poured out... It seemed like a whole lot and there was a lot on the toilet paper but the nurse didn't seem too concerned since it didn't really turn the water red or have clots. I'm sure I had to have passed more than a tablespoon (they said if it was that much to call the doctor or go to the hospital) since I left though so I'm a little worried I guess but it's hard to gauge in water. I'm thinking if I'm still bleeding a lot tomorrow I'll call. I'm feeling better now that I'm laying down and have gotten some of the air out and some food in so I guess that's good.

Just thought I'd share the 'news'... Doctor said no prednisone or anything (yay!!) Just the Lialda and probably suppositories or enemas which we'll talk about at my appointment on the 18th.

I'm gonna go take a nap now tongue

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/30/2008 1:49 PM (GMT -7)   
So I got the idea to use a [disposable] cup so I could really tell this time... Most definitely a tablespoon of blood (with some mucous maybe?) and one definite small clot, and this is my fifth or so time going to the bathroom and passed less this time so who knows what it adds up to... :-/
Could it be normal to bleed this much for someone with UC since our colons are already sensitive and prone to bleeding as it is? I haven't had blood lately, maybe a tiny bit on the TP before this, maybe I'm just being paranoid.

Post Edited (ediekristen) : 7/30/2008 3:45:16 PM (GMT-6)


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 7/30/2008 9:37 PM (GMT -7)   
I'm glad it's over edie, you sound good.  Overall the news sounds good, too, doesn't it?
 
Could the blood be from the biopsies?  It sounds like your doc was very thorough and took quite a few of them.  Hopefully it will continue to improve, even if little by little. 
 
 
Potato...  Female, 58, dx mild left sided ulcerative colitis 11/07
asacol 3 3x a day   asacol 2 3Xday
rowasa tapering to 2 x week
culturelle, citracell
Centrum, Vitamin E 400 mg
omeprazole 2x a day
oxazepam (anti anxiety) when needed
 
 
 
 
 
 


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 7/31/2008 5:31 AM (GMT -7)   
After my last scope, I had a lot of blood because of the biospies. I called my GI and he reassured me that it was normal to bleed like that for a couple of days. But if it continues to call the office. I also had frequent D after the scope which I didn't have before. I think the prep aggravated things as well as the scope. So basically I had a lot of bleeding and D for about 3 days and then things changed almost immediately. Just keep any eye on your bleeding. If you start to feel weak and/or have increased abdominal pain - go to the ER.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~2nd epidural injection 8/14, Neurontin and Skelaxin
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bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/31/2008 8:41 AM (GMT -7)   
Yay, no prednisone! That sounds good. Do you have any idea what your going to do next in regards to the UC?
I know my GI told me last year that I would have blood after my scope due to the biopsies. Maybe you have a lot of blood due to the many biopsies the GI took?
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*exploring the option of surgery
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/31/2008 8:57 AM (GMT -7)   
Thanks for the replies; I'm feeling better today, I have a constant crampy pain on my left side but it's not excrutiating, and I still feel kind of bloated but the bleeding seems to have slowed down. They didn't tell me how many biopsies were taken but it feels like a lot. I was getting a little nervous but then I figured they tell everyone who gets a colonoscopy to call if they pass more than a tablespoon, but I'm a 'normal' patient since I have UC and bleed easily as it is so probably a tablespoon is more than normal for me so I figured it was okay. My throat is still killing me but that's to be expected I guess. He mentioned adding suppositories and keeping the Lialda, but I think I'll ask for enemas because I did the Canasa suppositories once and they didn't help at all and just made me crampy, bloated, and gassy.

But you know, laying on the floor giving myself an enema the morning of (which was really painful after going to the bathroom 400 times from the prep) because I still wasn't clear and my butt was on fire and felt like the first few layers of skin had been burned off by acid, all I could think about was surgery. I'm sick of having to do this yearly or even every two or three years is too much. Every day I feel like I'm just that much closer to saying "enough is enough"


Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/31/2008 9:20 AM (GMT -7)   
Oh yeah, they gave me a new anesthesia this time.. It was called Diprivan (propofol). I usually get Versed and something else, I had never heard of this one but it was nice. They said "we're putting you to sleep now, goodnight!" and the last I remember was saying bye and then waking up kind of groggy but like I just had a wonderful nap. Good stuff.

Female, 23, Ulcerative colitis (pancolitis) diagnosed at age 15; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use. 

Current Meds:
Lexapro 10mg
Trying out Lialda, 2 pills/day

 
 

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