Hi Ashley. I know how you feel. I worry about those things almost all the time: I was a big enough dork before UC and now I have a pooping disease to add to it--will anyone want me? What will be the long-term side effects of Remicade? How long will the Remi last? I'm always worried and anxious when I leave the house. That being said...
I agree with Sue--maybe it's time to consider surgery. If Remicade is working for you, then you'll be able to schedule your surgery whenever you want. The bag is only something you'll have to wear for a few months (I know, I'm totally grossed out about it, too) and only about 5% of jpouch patients have pouch failure and have to revert back to the bag. There are risks and benefits to surgery and Remicade/keeping your colon, so it's something you have to weigh on your own. At least talk to a surgeon--I've talked to 3 surgeons and an additional GI, and they've all given me helpful information.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (3rd infusion 07/08), 2.4 g Lialda, 1 Forvia, 6 Colazal/day
*exploring the option of surgery